Kristina Schaoni Name: Kristina Schaoni

Age: 31

Where do you call home? Lübeck, Germany

Education (degree(s): How will FA add to your future [career]?: I have finished secondary school and after school I finished an education as a technical product designer. It’s been 7 years since I am not working, but working is my second goal for now.

Who do you live with? Right now I live with my mother and my brother but I have found an apartment and I will move as soon as I find assistants.

What's typical day for you? Most of my days are not similar.

How long have you known you are living with FA? In 2002 I got the diagnosis from a doctor in the hospital. I was 12.

Are there others in your family with FA? My brother.

Describe your transition from walking to wheelchair/walker: I was 18 when I started to need help with walking. I realized that a walker is a better solution and after 3 years It was hard for me to walk even with a walker and this is how I became a wheelchair user.

Kristina Schaoni What do you like to do to stay active and what type of exercises work for you to stay strong? I have twice a week physical therapy and once speech therapy. It’s enough for me because I think there are so many beautiful things to do other than worry about FA.

Do you have any hobbies or special interests? I like writing in my blog and modeling sometimes.

What is a good trick to make daily life easier? Don’t take life too seriously.

When FA gets you down, what do you think/do to feel better? How far I have come.

What is one way living with FA has POSITIVELY affected your life? I learned a lot with fa for example how to love myself. Having FA is like a guide in life. It tells you always what you need and when you do more or less you get punished so you know exactly where your limits are.

What is a favorite motivational quote of yours? You are a strong woman who has overcome battles most can’t even imagine. Don’t forget that.

What is the best advice YOU could give to a person who has been newly diagnosed with FA? The most important thing is loving yourself.

"I have FA but FA doesn't have me." What does this statement mean to you? How do you live your life in the face of adversity? FA can’t take control of my life.

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