Nick Lee 4Name: Nick Lee

Age: 28 (born in 1990)

Where do you call home? Alabama

Work: Cashier at Lowes Hardware Store

What is your relationship status? Married June 2018

What's a typical day for you? I work Monday, Wednesday, Friday and every other weekend, then I stay at home and relax and spend time with my family and friends.

How long have you known you are living with FA? Diagnosed December '04

Are there any others with FA in your family? No.

Nick Lee collageWhat do you use for mobility? I'm using a wheelchair full-time now, since 2012.

What do you like to do to stay active and what type of exercises work for you to stay strong? I wheel around my neighborhood to maintain upper body strength.

Do you have any hobbies or special interests? I'm a storm chaser!

When FA gets you down, what do you think/do to feel better? Talk to my friends/family.

What is one way living with FA has POSITIVELY affected your life? It gives me a better way to communicate and understand people.

What is a favorite motivational quote of yours? "I am ready to meet my Maker. Whether my Maker is prepared for the great ordeal of meeting me is another matter."

What is a piece of advice that someone with FA has given you that encourages and inspires you? To never give up and keep going.

What is the best advice YOU could give to a person who has been newly diagnosed with FA? Remember you are not alone.

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