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Meet the Community

You are not alone. The entire FA community, also known as the FAmily, is taking this journey with you. Meet a few of our dynamic people with FA below.  New Meet the Community interviews are posted every Monday, so be sure to visit often.  Please e-mail info@curefa.org if you would like to be interviewed for a Meet the Community post.
 

FARA Ambassadors

The FARA Ambassadors are a group of people living with FA who are committed to supporting FARA in the search for a treatment and cure. They represent the community by speaking at events, meeting pharmaceutical partners, giving media interviews, and more.

Meet the FAmily!


Sandra Johnson

Sandra Johnson Name: My name is Sandra Johnson!

Age: 56

Where do you call home? Scituate, Massachusetts

Education/Career: Graduated with a Bachelors Degree in Criminal Justice. I now own an Antique Consignment Shop in the town I live in.

Who’s in your family? Happily married for 30 years with two adult children, a son that is 29 and a daughter that is 26.

Jeremy Cowart

Jeremy Cowart Name: Jeremy Cowart

Age: 43

Where do you call home? Franklin, TN

Education (degree(s): Graduated from Middle Tennessee State University with a degree in Graphic Design.

Who do you live with? My wife and four children.

Corinne

Corinne Name: Corinne

Age: 35

Where do you call home? Near the beautiful city of Lucerne, Switzerland

Education (degree(s): I did an apprenticeship as a businesswoman (in the office). After I did some further education in marketing, I quit my job and started to do what makes me happy – traveling.

Who do you live with? I live alone in an apartment.

Frank Van Linden

Frank Van Linden Name: Frank Van Linden

Age: 38

Where do you call home? Antwerp, Belgium

Education (degree(s): I have a degree in marketing, but it was too hard to find a job due to my disease. That's why I studied multimedia. After my studies, I only worked in Winter, because I wanted to enjoy life and not being at my desk when the weather was good outside.

Who do you live with? I live with my girlfriend, every two weeks with her children and my dog.

Zach Gault

Zach Gault Name: Zach Gault

Age: 22

Where do you call home? North Carolina

Education (degree(s): I have an Associates in Arts Degree

Who do you live with? I currently live with my older brother.

What's a typical day for you? A typical day for me would be waking up and eating breakfast then showering. I watch TV, eat lunch, play Xbox sometimes and then go to the gym at night depending on how I’m feeling that day.

How long have you known you are living with FA? I was diagnosed with FA when I was 14 years old. I was diagnosed through genetic testing.

Are there any others with FA in your family? No other people in my family have FA.

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