Penn Medicine and Children’s Hospital of Philadelphia received a $3.25 million dollar gift to establish a center dedicated to a degenerative disease affecting one in every 50,000 people in the world.
FARA, the Friedreich’s Ataxia Research Alliance, is giving Penn and CHOP this money to establish a Center of Excellence, helping those like Grace Haupt.
“I’m a sixth grader, I go to The Episcopal Academy and I love to read. Oh, and I have a progressive disease called Freidreich’s Ataxia,” Grace said.
FARA Press Release: