Dear friends,

As you will see below, 2021 is off to an active start in Friedreich's ataxia research, advocacy, and events. There are a number of enrolling clinical studies and trials, and FARA announced funding for three new grants awards. rideATAXIA just launched their new virtual campaign- the Coastal Challenge, and there are many training and engagement opportunities for Rare Disease Day at the end of the month. Below, you'll find information on all of this and more. As always, thank you for your active engagement in these efforts and our work to reach treatments and a cure for FA.


Jen Farmer, Chief Executive Officer


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