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Monthly Update - July 2022

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Dear friends,

The 'Virtual Research' section of the FA App has gone live with the first academic research trial that you can enroll in and participate in directly via your phone.

Log in to the FA App and click on 'Research' and 'Virtual' and see the new study which has been posted. If you have removed The FA App from your phone, you can reinstall from the App Store or Google Play and login.

This first study required 15 FAers and 15 control subjects per age bracket. Thanks to all the FAers who have already enrolled and helped the study to reach its target for participants with FA in just a few weeks. The study is in need of more control subjects. We anticipate more virtual research opportunities in the future and new features based on community feedback.

Sincerely,
Jen

Jennifer Farmer,
FARA Chief Executive Officer

Other topics in our July Monthly update:
  • Recently Funded Grants
  • FA Woodstock
  • Minutes of Science
  • NIH BRAIN Initiative Challenge
    "Ethical Considerations of Brain Technologies"
  • Cure FA Soirée
  • Registration Open for United Against Ataxia Hill Day September 21, 2022
  • The FARA Energy Ball
  • Branding Science Survey
  • MPR News: Rare disease research at the University of Minnesota holds global promise
  • Open & Enrolling Studies
More...

Read the Full Monthly Update
 
 

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