On Saturday 9/13 a local ataxia family held a fundraiser at a local seafood restaurant. The event featured a silent auction, music, friends, drinks and as much crab as you could eat.
The event benefited the Friedreich's Ataxia Research Alliance and was organized by family and friends of Ashley Hartigan. Ashley is a 12 year old who suffers from Friedreich’s Ataxia. FA has robbed Ashley of the ability to participate in most sports, keep up with her friends and she struggles more each day to walk.
There were more than 200 people at this event and tickets sold out more than a month in advance. There is a lot of support for the Hartigan family in this community. The goal was to raise $25,000. I do not have the total at this point but by my estimation, the goal was reached.
The best part about the night was a presentation by the 20, 30 Club. Friends of the Hartigans had told Ashley's story and the 20, 30 Club decided to take action. They funded the purchase of a trike so that Ashley can ride bikes with her friends and stay in shape.
It was a great event and I am looking forward to next year!