2016 TCS NEW YORK CITY MARATHON—TEAM FARA
On Sunday, November 6, 2016, five members representing TEAM FARA ran the New York City Marathon to raise money for the Friedreich’s Ataxia Research Alliance. Team members included Felicia DeRosa, Jamie Young, Lucy Braid, Dr. Sathiji Nageshwaran and myself, Tom Batta. All of us share a connection to the FAmily and my connection is my 13 year old daughter, Ryanne, who was diagnosed with FA at age 8. In the last five years since the confirmation of FA, our family has learned to slow down and take one day at a time. We make every effort to remain present in the moment. We know the challenges of FA that lie ahead, but we are taking a “that is then” and “this is now” approach to life. Last March Jaime reached out to me and asked if I wanted to run for FARA, and I jumped at the opportunity! We feel very blessed by our family and friends who supported our efforts and together, TEAMFARA NYC 2016 raised $39,434!