Let Your Legacy Be Impactful Therapies for FA

The Bartek Legacy Circle

FARA advances FA research across treatment approaches because we will need a cocktail of therapies to slow, stop, and reverse the progression of FA. Today and in the future, FARA is committed to the development of those diverse therapies as well as supporting access to treatments for all living with FA.

Create your personal legacy and maximize your lasting impact on the future of FA treatments. The Bartek Legacy Circle, named for FARA’s Co-Founders Ron and Raychel Bartek, celebrates donors who support the future of FARA with a gift from their estate or a life income gift.

Bartek Legacy Circle Logo

There are many ways to include FARA in your planned giving:

  • Bequests
  • Charitable Remainder or Lead Trust
  • IRA Charitable Rollover (if 70 ½ or older)
  • Beneficiary Designations
    • IRA account
    • 401K
    • Life insurance
    • Donor Advised Fund

Naming Information for Bequests

To the Friedreich’s Ataxia Research Alliance ("FARA"), a not for profit, tax-exempt organization incorporated in the District of Columbia in 1998, having as its principal address 533 W Uwchlan Ave, Downingtown, PA 19335, and tax identification number EIN: 52-2122720, I [Name], of [City, State ZIP] hereby give and bequeath the sum of $___ or ___ percent of my estate for the general purposes of FARA.

Keith’s Legacy

Ron and Keith
Keith was the inspiration for the formation of FARA. Keith’s diagnosis of Friedreich’s ataxia at the age of 11 led his step-father and mother, Ron and Raychel Bartek, to establish the organization. Keith’s battle with FA ended, January 22, 2010, at the age of 24 due to congestive heart failure. Even during the final and very challenging months of Keith's life, he courageously encouraged Ron and Raychel to continue pursuing treatments for others with FA. The creation of FARA was their legacy. FARA's impact in the future can be yours.

How to Join the Bartek Legacy Circle

If you are ready to help secure a future without FA, please complete this form or contact: Felicia DeRosa, VP- Fundraising & Communications, 484-879-6160 felicia.derosa@curefa.org. We would like to thank you, make sure we understand your wishes, and welcome you into the Bartek Legacy Circle.

FARA does not provide tax, legal, or financial advice. Please consult your own advisors regarding your specific situation.  

Privacy Policy      Service Terms      Contact      Charity Navigator