Let Your Legacy Be Impactful Therapies for FA

The Bartek Legacy Circle

FARA advances FA research across treatment approaches because we will need a cocktail of therapies to slow, stop, and reverse the progression of FA. Today and in the future, FARA is committed to the development of those diverse therapies as well as supporting access to treatments for all living with FA.

Create your personal legacy and maximize your lasting impact on the future of FA treatments. The Bartek Legacy Circle, named for FARA’s Co-Founders Ron and Raychel Bartek, celebrates donors who support the future of FARA with a gift from their estate or a life income gift.

Bartek Legacy Circle Logo

There are many ways to include FARA in your planned giving:

  • Bequests
  • Charitable Remainder or Lead Trust
  • IRA Charitable Rollover (if 70 ½ or older)
  • Beneficiary Designations
    • IRA account
    • 401K
    • Life insurance
    • Donor Advised Fund

FARA + FreeWill

If you do not have an up-to-date plan in place, you can create your will for free using this trusted online resource from our partners at FreeWill, which makes it simple to start your legacy with FARA in a few minutes online. 

If you would prefer to finalize your will with an attorney, you can also save time with your lawyer by using FreeWill to document your wishes first.

Create My Will

If you’ve already included a gift in your will to FARA, we would love to thank you, make sure we understand your wishes, and welcome you into the Bartek Legacy Circle. Please fill out this brief form so that we can reach out.

Beneficiary Designation

Some assets, such as an IRA, 401(k), or life insurance policy, are not included in your will. By naming FARA as a beneficiary of one or more of these non-probate assets, you can help facilitate research for FA. Organize your assets and receive instructions on how to update them with this free tool.

Naming Information for Bequests

To the Friedreich’s Ataxia Research Alliance ("FARA"), a not for profit, tax-exempt organization incorporated in the District of Columbia in 1998, having as its principal address 533 W Uwchlan Ave, Downingtown, PA 19335, and tax identification number EIN: 52-2122720, I [Name], of [City, State ZIP] hereby give and bequeath the sum of $___ or ___ percent of my estate for the general purposes of FARA.

Keith’s Legacy

Ron and Keith
Keith was the inspiration for the formation of FARA. Keith’s diagnosis of Friedreich’s ataxia at the age of 11 led his step-father and mother, Ron and Raychel Bartek, to establish the organization. Keith’s battle with FA ended, January 22, 2010, at the age of 24 due to congestive heart failure. Even during the final and very challenging months of Keith's life, he courageously encouraged Ron and Raychel to continue pursuing treatments for others with FA. The creation of FARA was their legacy. FARA's impact in the future can be yours.


For any questions about legacy giving, please contact: Felicia DeRosa, VP- Fundraising & Communications, 484-879-6160, This email address is being protected from spambots. You need JavaScript enabled to view it..


FARA does not provide tax, legal, or financial advice. Please consult your own advisors regarding your specific situation.