News & Blog

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich’s Ataxia

Stealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia

Meet the 2024 FARA Fellows

FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube

FARA Celebrates 16 Years of Funding Adaptive Cycling Equipment Through The Ataxian Athlete Initiative (AAI) 

United Against Ataxia Hill Day 2024 – Registration open!

August 2024 – Advocacy Newsletter

Join us for FA Community Conversations – Genetic Medicine on August 29, 2024

Larimar Therapeutics Reports Several Updates on Nomlabofusp FA Program in Q2 2024 Operating and Financial Results

Job Opening – Accounting Specialist

FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable