Key Responsibilities

Key Responsibilities of the FARA Scientific Advisory Board include:

  • A commitment to FARA’s mission; advancing treatments & improving clinical outcomes for individuals with FA
  • A commitment to helping FARA grow and nurture the FA research community
  • To promote collaboration in the FA research community
  • Reviewing grants and making funding recommendations
  • Assessing gaps in research portfolio and making recommendations for new opportunities/research directions

Co-Chairs

Bronya Keats, PhD

Emeritus Professor of Genetics, LSU Health Sciences Center

Giovanni Manfredi, MD, PhD

Professor of Neurology and Neuroscience Weill Cornell Medical College

Advisors

Sanjay Bidichandani, PhD

Section Head of Genetics, University of Oklahoma College of Medicine Department of Pediatrics
Board of Directors, FARA

Joy Cavagnaro, PhD

President
Access BIO

Joel Gottesfeld, PhD

Professor Emeritus
Department of Molecular Medicine Scripps Research Institute

Sidney Hecht, PhD

Director, Biodesign Center for Bioenergetics
Arizona State University

David Lynch, MD, PhD

Professor of Neurology
Children’s Hospital of Philadelphia / University of Pennsylvania

Jane Larkindale, DPhil

Vice President of Clinical Science
PepGen

James McArthur, PhD

President and CEO, PepGen
Board of Directors, FARA

Marek Napierala, PhD

Department of Neurology
UT Southwestern

Massimo Pandolfo, MD, FAAN, FEAN

Professor (Clinical)
Department of Neurology and Neurosurgery
McGill University

Mark Payne, MD

Professor of Pediatrics (Cardiology)
Indiana University School of Medicine

Hélène Puccio, PhD

Research Director Inserm
Institut NeuroMyoGene (INMG)

Bernard Ravina, PhD

Entrepreneur in Residence
Atlas Venture

Kathrin Reetz, MD

Department of Neurology
RWTH Aachen University

James Rusche, PhD

Consultant, Pharma and Biotech Product Development
Board of Directors, FARA

Kevin Whittlesey, PhD

Founder and Principal
RegenMed Advisors, LLC

Robert Wilson, PhD

Professor of Pathology and Laboratory Medicine
University of Pennsylvania