Fundraising & Events

Fundraisers are one way community members can contribute to FA research. Each gathering fuels critical research and paves the way to bring treatments and cures to the FA community. FARA hosts fundraisers all over the United States, such as the glamorous Energy Ball in Tampa, FL and the nationwide cycling series rideATAXIA.  Dedicated volunteers also host local events as part of FARA’s grassroots program.

Can’t find an event near you? FARA’s fundraising team empowers individuals and groups to plan community events—from dinner parties to 5k walks to drive-in movies.

Learn About FARA Fundraising & Events
lots of hands with cure FA message

Upcoming Events

EVENT | Nov 2 2024

rideATAXIA Dallas

rideATAXIA
Lewisville Railroad Park, Lewisville, Texas
EVENT | Nov 3 2024

Team FARA: TCS New York City Marathon

FARA has been named an Official Charity Partner for the 2024 TCS New York City Marathon. Six members of Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA). FARA's entries for this event have all been claimed. Please consider joining our waitlist should entires become available.

TeamFARA
Marathon Course, New York
EVENT | Nov 4 2024

An Informational Webinar hosted by Larimar Therapeutics

Learn from Larimar Therapeutics about an upcoming pediatric study for nomlabofusp (CTI-1601), updates on the current nomlabofusp open label extension study, and plans for a future Phase 3 study.

Education
Virtual
EVENT | Nov 12 2024

International Congress for Ataxia Research (ICAR)

Ataxia UK, National Ataxia Foundation (NAF), Friedreich’s Ataxia Research Alliance (FARA) and Ataxia Global Initiative (AGI) are partnering to host the International Congress for Ataxia Research (ICAR) 2024.

Research
Leonardo Royal Hotel London Tower Bridge, London
EVENT | Dec 6 2024

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
JW Marriott Tampa Water Street, Tampa, Florida
EVENT | Feb 1 2025

Runway to the Cure

Join us on February 1, 2025, from 6-10 PM for Runway to the Cure at Banyan Air in Ft. Lauderdale, FL. Enjoy dinner, a silent auction, and music while supporting Friedreich’s Ataxia research!

Grassroots
Banyan Air, Fort Lauderdale, Florida
EVENT | Mar 29 2025

BBQ Love Fest

BBQ Love Fest was born out of the love of Bar-B-Que, with renowned pitmasters from all over the country. Along with local Cook Teams competing for your vote as who is the best local pitmaster. Mix incredible music all day long and find out how Tampa does BBQ Love Fest. BBQ Love Fest is more than a good time, it’s a philanthropic event that supports FARA.

Grassroots
Perry Harvey Sr. Park, Tampa
EVENT | Jun 7 2025

Cure FA Soirée

The 8th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.

Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma

Connect

FARA fosters a vibrant community, offering both in-person and virtual ways to connect so you can find support and strength on your journey. Connect in-person or virtually with families and individuals with FA or learn more directly from the professionals at one of FARA’s educational events.

Make a Connection
3 female and 1 male with lovely smiles image

FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Team of pople at event

Ways to Give

FARA is committed to advancing research towards meaningful therapeutics for Friedreich’s ataxia. Because FARA focuses its funding solely on carefully vetted research, each donation fuels the very engine driving progress in the search for treatments and cures – a testament to the collective power of compassion and action.

From small monthly donations through the Pathway program to employer-matched donations, there are many ways to give that suit any budget or financial situation.

Group of children in fancy dress

Participate in Research

Individuals with FA can be powerful partners in research. Sharing your experiences and data through research studies helps scientists learn more about FA and moves us closer to new treatments and cures.

Studies come in different forms, some simply observing the progression of the disease (natural history studies), while others test new treatment options (interventional clinical trials). Regardless of the type, participation is crucial to advancing research.

Participate in Research
young girl in hospital

Advocate

The most effective voice in making change is yours. Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.

Learn About FA Advocacy
Man speaking at conference

Join FARA’s Community Newsletter

Stay up to date with the latest updates at FARA and in the whole FA community. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Sign up today and you’ll be on your way to staying connected and informed.

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