Fundraising & Events

Fundraisers are one way community members can contribute to FA research. Each gathering fuels critical research and paves the way to bring treatments and cures to the FA community. FARA hosts fundraisers all over the United States, such as the glamorous Energy Ball in Tampa, FL and the nationwide cycling series rideATAXIA.  Dedicated volunteers also host local events as part of FARA’s grassroots program.

Can’t find an event near you? FARA’s fundraising team empowers individuals and groups to plan community events—from dinner parties to 5k walks to drive-in movies.

Learn About FARA Fundraising & Events
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Upcoming Events

| Jul 21 2024

rideATAXIA Chicago

Registration now open!

rideATAXIA, Channahon Central Park
| Jul 26 2024

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area.

Grassroots, Lincoln High School
| Jul 27 2024

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area.

Grassroots, Lincoln High School
| Aug 2 2024

Daniel Price Streaming Live

The Friedreich's ataxia community outreach Facebook Group will host a one-hour live music performance to raise money to help fund research for FARA. Music will be Electronic Dance/Ambient soundscapes by Daniel Price. Music will be performed via Facebook live broadcast. This event is available online to the general public and is suitable for all ages.

Grassroots, Virtual
| Aug 11 2024

Rock 'N' Jock Charities: Night of Entertainment

Grassroots, Garden Pavilion, Crowne Plaza
| Aug 12 2024

Rock 'N' Jock Charities: Golf Tournament

Grassroots, Potowomut Golf Club
| Aug 24 2024

FA Research Reception Tacoma

Registration, hotel block, and full agenda will be available soon.

Education, Hotel Murano
| Sep 8 2024

Fuzzy Buzzy Charity Golf Tournament

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots, Windham
| Sep 13 2024

Golf-ATAXIA 18 Hole Scramble

Grassroots, Brentwood Golf Club
| Sep 14 2024

rideATAXIA Hometown Twin Cities

rideATAXIA, Wakefield Park Community Building
| Sep 21 2024

Race for Matt & Grace

Join the families of FA patients Matt DiIorio, Grace Hopkins, and Alex Fielding at Rhode Island College in Providence for the Annual Race for Matt & Grace. This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.

Grassroots, Rhode Island College
| Sep 26 2024

Living with Purpose - An Evening to Cure FA

Help us Celebrate Life with Purpose. Hors D'oeuvres, Dinner, Dessert, Cash Bar, Raffle, Silent Auction, Complimentary holistic practicioners.

The Owenego


FARA fosters a vibrant community, offering both in-person and virtual ways to connect so you can find support and strength on your journey. Connect in-person or virtually with families and individuals with FA or learn more directly from the professionals at one of FARA’s educational events.

Make a Connection
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FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Team of pople at event

Ways to Give

FARA is committed to advancing research towards meaningful therapeutics for Friedreich’s ataxia. Because FARA focuses its funding solely on carefully vetted research, each donation fuels the very engine driving progress in the search for treatments and cures – a testament to the collective power of compassion and action.

From small monthly donations through the Pathway program to employer-matched donations, there are many ways to give that suit any budget or financial situation.

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Participate in Research

Individuals with FA can be powerful partners in research. Sharing your experiences and data through research studies helps scientists learn more about FA and moves us closer to new treatments and cures.

Studies come in different forms, some simply observing the progression of the disease (natural history studies), while others test new treatment options (interventional clinical trials). Regardless of the type, participation is crucial to advancing research.

Participate in Research
young girl in hospital


The most effective voice in making change is yours. Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.

Learn About FA Advocacy
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Join FARA’s Community Newsletter

Stay up to date with the latest updates at FARA and in the whole FA community. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Sign up today and you’ll be on your way to staying connected and informed.

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