Get Involved

FARA fosters a vibrant community, offering both in-person and virtual ways to connect so you can find support and strength on your journey. Connect in-person or virtually with families and individuals with FA or learn more directly from the professionals at one of FARA’s educational events.

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

FARA is committed to advancing research towards meaningful therapeutics for Friedreich’s ataxia. Because FARA focuses its funding solely on carefully vetted research, each donation fuels the very engine driving progress in the search for treatments and cures – a testament to the collective power of compassion and action.

From small monthly donations through the Pathway program to employer-matched donations, there are many ways to give that suit any budget or financial situation.

Individuals with FA can be powerful partners in research. Sharing your experiences and data through research studies helps scientists learn more about FA and moves us closer to new treatments and cures.

Studies come in different forms, some simply observing the progression of the disease (natural history studies), while others test new treatment options (interventional clinical trials). Regardless of the type, participation is crucial to advancing research.

The most effective voice in making change is yours. Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.