Fundraising & Events

Fundraisers are one way community members can contribute to FA research. Each gathering fuels critical research and paves the way to bring treatments and cures to the FA community. FARA hosts fundraisers all over the United States, such as the glamorous Energy Ball in Tampa, FL and the nationwide cycling series rideATAXIA.  Dedicated volunteers also host local events as part of FARA’s grassroots program.

Can’t find an event near you? FARA’s fundraising team empowers individuals and groups to plan community events—from dinner parties to 5k walks to drive-in movies.

Learn About FARA Fundraising & Events
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Upcoming Events

EVENT | Jul 18 2025

43rd Annual Claxton Classic Golf Tournament

Golf tournament. Entry includes breakfast, green fees, cart, driving range, and lunch.

Grassroots
Compass Pointe Golf Course, Pasadena, Maryland
EVENT | Jul 20 2025

rideATAXIA Chicago 2025

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
EVENT | Jul 25 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jul 26 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Aug 6 2025

Community Conversations: FA Drug Development Pipeline

Join us for the next FA Community Conversation on Wednesday, August 6, at 12 p.m. ET. FARA hosts these virtual sessions to keep the FA community informed and engaged. They are live, interactive events that offer individuals living with FA and their families the opportunity to learn and ask questions.

Education
Virtual
EVENT | Aug 9 2025

Swing for a Cure: Softball Tournament

Softball tournament 10U Rec Friendly. $125/Team for 2 Games. Features Bet & 50/50 Raffles, Concession Stand, No Gate Fees, and Shirts for Pre-Order.

Grassroots
Greentown Athletic Club, Uniontown
EVENT | Aug 10 2025

Rock 'N' Jock Charities: Night of Entertainment

A Night of Entertainment featuring Steve Smith and The Nakeds with special guests, a silent auction, dinner, drinks and dancing.

Grassroots
The Crowne Plaza Warwick, Warwick
EVENT | Aug 11 2025

Rock 'N' Jock Charities: Golf Tournament

Golf Tournament

Grassroots
EVENT | Aug 16 2025

8th Annual Race for Matt & Grace Golf Tournament

Golf tournament benefitting The Race for Matt & Grace, Inc.

Grassroots
Valley Country Club, Warwick
EVENT | Sep 7 2025

Fuzzy Buzzy Charity Golf Tournament 2025

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots
Windham Country Club, Windham, New Hampshire
EVENT | Sep 13 2025

Teeing Up for Tye

Teeing Up for Tye is a golf tournament in memory of Tye Bell, inspired by his passion for golf. Funds from Teeing Up for Tye will benefit the Tye Bell Memorial Scholarship and FARA.

Grassroots
Mill Creek Country Club, Salado, Texas
EVENT | Sep 17 2025

7th United Against Ataxia Hill Day

Advocacy
Virtual

Connect

FARA fosters a vibrant community, offering both in-person and virtual ways to connect so you can find support and strength on your journey. Connect in-person or virtually with families and individuals with FA or learn more directly from the professionals at one of FARA’s educational events.

Make a Connection
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FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Team of pople at event

Ways to Give

FARA is committed to advancing research towards meaningful therapeutics for Friedreich’s ataxia. Because FARA focuses its funding solely on carefully vetted research, each donation fuels the very engine driving progress in the search for treatments and cures – a testament to the collective power of compassion and action.

From small monthly donations through the Pathway program to employer-matched donations, there are many ways to give that suit any budget or financial situation.

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Participate in Research

Individuals with FA can be powerful partners in research. Sharing your experiences and data through research studies helps scientists learn more about FA and moves us closer to new treatments and cures.

Studies come in different forms, some simply observing the progression of the disease (natural history studies), while others test new treatment options (interventional clinical trials). Regardless of the type, participation is crucial to advancing research.

Participate in Research
young girl in hospital

Advocate

The most effective voice in making change is yours. Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.

Learn About FA Advocacy
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Join FARA’s Community Newsletter

Stay up to date with the latest updates at FARA and in the whole FA community. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Sign up today and you’ll be on your way to staying connected and informed.

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