Fundraising & Events

Fundraisers are one way community members can contribute to FA research. Each gathering fuels critical research and paves the way to bring treatments and cures to the FA community. FARA hosts fundraisers all over the United States, such as the glamorous Energy Ball in Tampa, FL and the nationwide cycling series rideATAXIA.  Dedicated volunteers also host local events as part of FARA’s grassroots program.

Can’t find an event near you? FARA’s fundraising team empowers individuals and groups to plan community events—from dinner parties to 5k walks to drive-in movies.

Learn About FARA Fundraising & Events
lots of hands with cure FA message

Upcoming Events

EVENT | May 28 2025

FARA Flask Talks Session #2

Education
EVENT | Jun 6 2025

Fine Arts for FA: Shrek the Musical

SHREK THE MUSICAL is presented through special agreement with Musical Theatre International (MTI). All authorized performance materials are also supplied by MTI. www.mtishows.com Book and Lyrics by David Lindsay-Abaire. Music by Jeanine Tesori. Originally produced on Broadway by DreamWorks Theatricals and Neal Street Productions.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jun 7 2025

FA Research Reception – Oklahoma City, OK

More details TBD. This is a free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
Vast OKC, Oklahoma City, Oklahoma
EVENT | Jun 7 2025

Go Hog Wild for FARA!

Go Hog Wild for FARA! $40 includes full meal with pig and sides, hamburgers, and hotdogs. Children under 12 free.

Grassroots
Portuguese American Social Club, Smithfield, Rhode Island
EVENT | Jun 7 2025

Cure FA Soirée

The 8th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.

Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Jun 7 2025

Fine Arts for FA: Shrek the Musical

SHREK THE MUSICAL is presented through special agreement with Musical Theatre International (MTI). All authorized performance materials are also supplied by MTI. www.mtishows.com Book and Lyrics by David Lindsay-Abaire. Music by Jeanine Tesori. Originally produced on Broadway by DreamWorks Theatricals and Neal Street Productions.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jun 8 2025

Fine Arts for FA: Shrek the Musical

SHREK THE MUSICAL is presented through special agreement with Musical Theatre International (MTI). All authorized performance materials are also supplied by MTI. www.mtishows.com Book and Lyrics by David Lindsay-Abaire. Music by Jeanine Tesori. Originally produced on Broadway by DreamWorks Theatricals and Neal Street Productions.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jun 29 2025

rideATAXIA Hometown Boston

Join our local Boston committee for a family-friendly ride along the original battlefields where the Revolutionary War began! The Boston FA community has a strong history of raising funds for FA research. This will be our third annual rideATAXIA Hometown Boston event.

rideATAXIA
Lexington Visitors Center, Lexington, Massachusetts
EVENT | Jul 18 2025

43rd Annual Claxton Classic Golf Tournament

Golf tournament. Entry includes breakfast, green fees, cart, driving range, and lunch.

Grassroots
Compass Pointe Golf Course, Pasadena, Maryland
EVENT | Jul 20 2025

rideATAXIA Chicago 2025

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
EVENT | Jul 25 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jul 26 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls

Connect

FARA fosters a vibrant community, offering both in-person and virtual ways to connect so you can find support and strength on your journey. Connect in-person or virtually with families and individuals with FA or learn more directly from the professionals at one of FARA’s educational events.

Make a Connection
3 female and 1 male with lovely smiles image

FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Team of pople at event

Ways to Give

FARA is committed to advancing research towards meaningful therapeutics for Friedreich’s ataxia. Because FARA focuses its funding solely on carefully vetted research, each donation fuels the very engine driving progress in the search for treatments and cures – a testament to the collective power of compassion and action.

From small monthly donations through the Pathway program to employer-matched donations, there are many ways to give that suit any budget or financial situation.

Group of children in fancy dress

Participate in Research

Individuals with FA can be powerful partners in research. Sharing your experiences and data through research studies helps scientists learn more about FA and moves us closer to new treatments and cures.

Studies come in different forms, some simply observing the progression of the disease (natural history studies), while others test new treatment options (interventional clinical trials). Regardless of the type, participation is crucial to advancing research.

Participate in Research
young girl in hospital

Advocate

The most effective voice in making change is yours. Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.

Learn About FA Advocacy
Man speaking at conference

Join FARA’s Community Newsletter

Stay up to date with the latest updates at FARA and in the whole FA community. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Sign up today and you’ll be on your way to staying connected and informed.

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