TOGETHER WE WILL CURE FA
Powering research to treat Friedreich’s Ataxia
We believe that transformative change lies at the intersection of people and science.
Make a difference today
MESSAGE FOR FA FAMILIES
Dear FA family,
Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.
The FA Community is an active and supportive one. Together, we fund and facilitate research to slow, stop, reverse, and cure Friedreich’s ataxia (FA). We hope there is comfort in knowing you are not alone. Visit our Understanding FA section to help you to learn about and manage FA.
Visit Understanding FA
LIFE CHANGING RESEARCH
Leading to the discovery and advancement of treatments for FA
Join a passionate community and change the course of this rare disease
We work in collaboration and with a sense of urgency to build strong relationships, expand knowledge, and remove uncertainty.
FUNDING
Apply for a research grant and make an impact
FARA funds a competitive, peer-reviewed grant program.
COLLABORATION
Work with an experienced research community
FARA fosters meaningful relationships, helping to develop new life changing treatments for FA.
KNOWLEDGE
Utilize FARA resources to help optimize the pace of research
Benefit from our thriving and experienced research community and utilize our extensive resource library.
FARA NEWS
Latest news from our community.
November 2024 - Advocacy Newsletter
AdvocacyLarimar Therapeutics Presents Additional Data from Phase 1 Studies and Phase 2 Dose Exploration Study Supporting the Nomlabofusp Clinical Program at ICAR 2024
Industry NewsLexeo Therapeutics Announces Complete Enrollment of LX2006 SUNRISE-FA Phase 1/2 trial and Alignment with FDA on an Accelerated Approval Pathway
Industry NewsLarimar Therapeutics Announces Three Poster Presentations at the 2024 International Congress for Ataxia Research (ICAR) on November 12–15, 2024
Industry NewsCapsida Biotherapeutics to Present New Preclinical Data for Friedreich’s Ataxia Next-Generation Gene Therapy to Target CNS, Cardiac Tissues and Sensory Regions
Industry News
Global Ataxia Advocacy Organizations Unite to Host Largest International Congress for Ataxia Research in London
FARA News, ResearchPapillon Therapeutics Receives Rare Pediatric Disease Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich's Ataxia
Industry NewsPTC Therapeutics Announces Positive Results from Long-Term Treatment Studies and Updates on Regulatory Progress for Vatiquinone Friedreich Ataxia Program
Industry News
September 2024 - Advocacy Newsletter
Advocacy
Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”
AdvocacyPapillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich's Ataxia
Industry NewsStealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia
FARA News, Industry News, Research
FARA events
Our upcoming events.
The FARA Energy Ball
The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).
FARA Energy Ball
JW Marriott Tampa Water Street, Tampa, Florida
Runway to the Cure
Join us on February 1, 2025, from 6-10 PM for Runway to the Cure at Banyan Air in Ft. Lauderdale, FL. Enjoy dinner, a silent auction, and music while supporting Friedreich’s Ataxia research!
Grassroots
Banyan Air, Fort Lauderdale, Florida
BBQ Love Fest
BBQ Love Fest was born out of the love of Bar-B-Que, with renowned pitmasters from all over the country. Along with local Cook Teams competing for your vote as who is the best local pitmaster. Mix incredible music all day long and find out how Tampa does BBQ Love Fest. BBQ Love Fest is more than a good time, it’s a philanthropic event that supports FARA.
Grassroots
Perry Harvey Sr. Park, Tampa
Cure FA Soirée
The 8th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.
Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma