In recognition of FA Awareness Day on May 16, the month of May is devoted to raising awareness about Friedreich’s ataxia (FA) and accelerating progress toward treatments and a cure.
It takes the entire FA community to move research forward, and awareness is a key driver of progress.
We invite you to take part in FARA’s #CommunityToCureFA social campaign by sharing your most creative #cureFA photos.
Make a “cure FA” sign or spell it out in crayons or coins, fruit, or even Legos! Then, snap a photo of you with your creation and post it on social media with #CommunityToCureFA.
Anyone who submits a photo to FARA by May 12 will have their photo shared on FARA social media on FA Awareness Day, May 16, and be entered into a drawing for FARA swag!
Join us this May for our annual FARA Flash Talks webinar series!
Each session will consist of Flash Talks from FARA Graduate Research Fellowship recipients and FARA Fellows, moderated by FA community members. Learn more about some of the ongoing FA research projects made possible by your fundraising efforts. The talks are suitable for a lay audience. A brief Q&A will follow each talk.
Understanding and treating nerve damage in Friedreich’s Ataxia
Agostina Di Pizio (Ospedale San Raffaele)
Analyzing Friedreich’s ataxia hearts at single cell level
Vi Tang (Harvard University)
Studying a rare frataxin mutation in zebrafish to find new clues about friedreich’s ataxia
Jessy van Asperen (Institute Neuromyogène, University of Lyon)
How Friedreich’s ataxia affects the heart and what we’re doing to help
Marta Moya Jodar (University of Oxford)
Investigating sensory motor pathology using two mouse models of FA
Nicholas Stachowski (Children’s Hospital of Philadelphia)
Mapping the transcriptional landscape of cardiac fibrosis in a mouse model of Friedreich’s ataxia cardiomyopathy
Anna Stepanova (Cornell University)
Your donation can accelerate breakthroughs.
FARA is receiving more research grant applications than ever before — but developing those ideas into treatments depends on you. Help us make a difference by supporting FARA’s mission to treat and cure FA.
Together, we will slow, stop, reverse and cure FA!
Decorate your home with lovely spring flowers. Your purchase will make a difference those living with Alzheimer's and FA.
Grassroots
The TBKT offers youth athletes, experienced and first-timers alike, the unique opportunity to swim, bike and run in and around Busch Gardens’® premier water park, Adventure Island.
Grassroots
Join us on May 9 for a pre-Mother's Day family-friendly ride!
rideATAXIA
The NJ Seaside Stride is a fun, family-oriented event hosted by NJ families working to raise awareness and research funds for FA. The event features a walk on the boardwalk, lunch, and gift auction. More info to come.
Grassroots
This free workout event will raise awareness for FA. Shirts will be available for sale to benefit FARA.
Grassroots
Eat at City Barbeque in support of FARA! Present flyer or use online code to have 20% of sales donated to FARA.
Grassroots
Join Solid Biosciences for an informational webinar on Tuesday, May 26 at 12 PM ET for people living with FA and their families. Matthew Harmelink, MD, Therapeutic Area Head of Neuromuscular, and Seth Rotberg, Senior Manager of Patient Advocacy, will provide an update about Solid's FALCON gene therapy (SGT-212) phase 1b study.
Education