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Rare Disease Day

Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.

Hope for ToMORROW

Join Hope for ToMORROW to celebrate FARA and its contributions to research for Friedreich's Ataxia.

Houston FA Research Reception

This is a free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Hope for a Cure

Presented by The Race for Matt & Grace. Admission includes generous selection of food stations, passed hors d’oeuvres, and live entertainment.

rideATAXIA Hometown Lake Charles

We invite you to join us for a fun 3-mile ride at Sam Houston Jones State Park and celebrate your fundraising efforts with teammates.

Torrance FA Research Reception

The Friedreich's Ataxia Research Alliance (FARA) will host a half-day FA Research Reception on April 24 at the Torrance Marriott Redondo Beach in Torrance, CA.

Raise A Glass to FARA - Wine Tasting

Raise a glass to FARA with a wine tasting at Gooseneck Vineyards! $30 Admission includes a complimentary glass of wine and appetizers.

rideATAXIA Hometown Chico

Join us on May 9 for a pre-Mother's Day family-friendly ride!

New Jersey Seaside Stride

SAVE THE DATE! The NJ Seaside Stride is a fun, family-oriented event hosted by NJ families working to raise awareness and research funds for FA. The event features a walk on the boardwalk, lunch, and gift auction. More info to come.

rideATAXIA Hometown Danville

9th Annual Race for Matt & Grace Golf Tournament

Golf tournament benefitting The Race for Matt & Grace, Inc.

Oklahoma City FA Research Reception

Meet the Community: Josh Wooten

Meet the Community: Preston Lynch

Meet the Community: Jamie Cusick

Meet the Community: Aly Bourbeau

Meet the Community: Giovanna Boscolo Castilho Gonçalves

Meet the Community: Renee Brown

Meet the Community: Roxanne

Meet the Community: Lily Pierce

Meet the Community: Alex Fielding

Meet the Community: Mary-Jayne Holley

Meet the Community: Alexis Baker

Meet the Community: Melanie