LEARN ABOUT FA FROM INDIVIDUALS WITH FA, FAMILIES, RESEARCHERS, & MORE

Attend an Educational Event

The Friedreich’s Ataxia Research Alliance (FARA) hosts several educational events throughout the year including webinars, regional research receptions, and the annual Friedreich’s ataxia (FA) Symposium in Philadelphia which can be attended virtually or in-person.

These events highlight updates on the FA drug development pipeline, clinical management of FA, insights on living with FA and more. Speakers include researchers and pharmaceutical partners working on FA, clinicians with FA expertise, and individuals with FA and their caregivers.

Learn About FARA’s Educational Events
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GATHER TO RAISE FUNDS AND AWARENESS FOR FA

Attend a Community Event

With the help of local communities around the country, FARA hosts a wide array of events such as fundraisers and advocacy events. These events are one of many ways to contribute to FA awareness and finding treatments and cures.

For individuals living with FA and their families, attending community events offers invaluable opportunities to connect with others on the same journey, feel empowered, develop the skills and confidence to advocate for themselves, and witness first-hand the collective strength of community.

Learn About FA Community Events Find a Community Event Near You
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Upcoming Community Events

EVENT | Oct 4 2026

Fuzzy Buzzy Charity Golf Tournament

RESCHEDULED DATE 10/4! Join the family and friends of Erin O'Neil in Windham, NH for the 22nd year of this golf tournament!

Grassroots
Windham Country Club, Windham, New Hampshire
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rideATAXIA Philly logo
EVENT | Oct 11 2026

rideATAXIA Philly 2026

Join us at Montgomery County Community College for an amazing day with our FAmily. Choose between a 3-, 6-, 26-, or 46-mile ride, or a 1.5-mile walk/ride on campus – there's something for everyone! After your ride, join us for an awesome celebration of your fundraising efforts to help find treatments and cures for FA.

rideATAXIA
Montgomery County Community College, Blue Bell, Pennsylvania
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EVENT | Oct 11 2026

Jumpin' for Jazz Benefit Concert & Silent Auction

Join Jumpin' for Jazz in Indianapolis, Indiana for a silent auction and live music featuring Rob Dixon and Sandy Williams.

Grassroots
Jazz Kitchen, Indianapolis, Indiana
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FARA education logo
EVENT | Oct 12 2026

FARA & CHOP FA Symposium

Save the date! This is a free day-long event held in King of Prussia, Pennsylvania, filled with presentations for people living with FA and their families, with the option to participate in-person or virtually.

Education
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FARA education logo
EVENT | Oct 17 2026

USF Research Reception Brunch

The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
USF Health Morsani College of Medicine & Heart Institute, Tampa
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FARA Energy Ball
EVENT | Oct 17 2026

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
Tampa Marriott Water Street, Tampa, Florida
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EVENT | Oct 24 2026

Mattoberfest 2026

Enjoy an Octoberfest event for FARA in Matt DiIorio's memory.

Grassroots
Narragansett Brewery, Providence
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EVENT | Nov 1 2026

Team FARA: TCS New York City Marathon

FARA is an Official Charity Partner for the 2026 TCS New York City Marathon. Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA).

Grassroots
new york, New York
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rideATAXIA Dallas logo
EVENT | Nov 7 2026

rideATAXIA Dallas 2026

Get ready for an amazing day at Lewisville Railroad Park on Saturday, November 7! Registration is now open.

rideATAXIA
Lewisville Railroad Park, Lewisville, Texas
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EVENT | Nov 10 2026

International Congress for Ataxia Research

Ataxia UK, NAF, FARA, and AGI are pleased to announce the date for the next International Congress for Ataxia Research (ICAR). ICAR 2026 will take place at the Renaissance Atlanta Waverly Hotel & Convention Center in Atlanta, GA. Please save the date for November 10-13, 2026.

Research
Renaissance Atlanta Waverly Hotel & Convention Center, Atlanta, Georgia
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Grassroots events logo
EVENT | Nov 14 2026

Epic Game Day

The most epic of game days - to benefit FARA. The event will feature food, free-play games, and tournaments.

Grassroots
Natural Twenty Games, Henderson
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Grassroots events logo
EVENT | Feb 6 2027

Runway to the Cure

Join us on February 6, 2027, from 6-10 PM for Runway to the Cure at Banyan Air in Ft. Lauderdale, FL. Enjoy dinner, a silent auction, and music while supporting Friedreich’s Ataxia research!

Grassroots
Banyan Air, Fort Lauderdale, Florida
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SUPPORT FARA IN THE SEARCH FOR TREATMENTS AND CURES

FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Learn About the FARA Ambassador Program Meet the Ambassadors
Team of pople at event

Meet the Community

Blog | Sep 21, 2026

Meet the Community: Lilly King

Community
Read Story
Blog | Sep 17, 2026

My Story by Laura Beth Jacquin

Community
Read Story
Blog | Sep 15, 2026

See Ya Around the Kitchen: A Cookbook With a Purpose

Community
Read Story
Blog | Sep 11, 2026

Meet the Community 2: A Closer Look - Zoe Gräf

Community
Read Story
Blog | Sep 8, 2026

Meet the Community: Leah Alstin

Community
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Blog | Aug 31, 2026

Meet the Community: Annette

Community
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Blog | Aug 24, 2026

Meet the Community: Laxmi Singh

Community
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Blog | Aug 17, 2026

Meet The Community: Kiersten Riggs

Community
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Blog | Aug 10, 2026

Meet The Community: Antonio José Matos Moreira

Community
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Blog | Aug 3, 2026

Meet The Community: Donovan Simpson

Community
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Blog | Jul 27, 2026

Meet The Community: Savannah Glenn

Community
Read Story
Blog | Jul 20, 2026

Meet The Community: Hayden Howard

Community
Read Story
POWER THE CURE FOR FRIEDREICH’S ATAXIA

The FA App

The FA App helps connect and empower individuals with FA worldwide so they can meaningfully participate in FA research. The FA App is available on iOS and Android.

Download FA App
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FAPG, FA HANGOUTS, FA TEEN HANGOUTS

Other Ways to Connect

There are many other platforms that individuals with FA and their families can use to connect with each other, both through FARA and externally. The Friedreich’s Ataxia Parents Group (FAPG) is a free international email-based support group for parents and guardians of children with FA or other childhood-onset/undiagnosed ataxias. The FAPG is run by a group of parents of individuals with FA.

Each month, FARA ambassadors host virtual Hangouts (for adults) and Teen Hangouts (for ages 13-19). FA Hangouts are an opportunity to hang out online for adults with Friedreich’s ataxia (caregivers to assist are welcome to accompany adults with FA). Teen Hangouts is an opportunity to hang out online for teens with ataxia, moderated by two adult FARA ambassadors. Visit the page to learn more about the schedule and guidelines.

Visit FAPG Website Learn more about FA Hangouts
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FOLLOW FARA FOR THE LATEST FA NEWS

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Join FARA’s Community Newsletter

Stay up to date on the latest educational events for the FA community and more. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Choose your preferences using the form to the right and you’ll be on your way to staying connected and informed.

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