Research Receptions and Webinars

Each year, regional research receptions take place in different cities across the country. These in-person receptions highlight updates on the FA Drug Development Pipeline, clinical management of FA, insights on living with FA and more.

Speakers include FARA leadership, individuals with FA and caregivers, researchers and pharmaceutical partners working on FA, and clinicians with FA expertise.

Webinars are another way to learn about ongoing efforts in the FA community in the comfort of your own home. Tune in to learn about clinical trial updates from our pharmaceutical partners and advocacy and research initiatives led by FARA. Webinars occur every few months and are typically an hour long with time allotted for questions from the audience.

Past Virtual Event Recordings
image of 4 people taking part in event speaking

FA Symposium

Each fall, FARA and the Friedreich’s Ataxia Center of Excellence at Children’s Hospital of Philadelphia (CHOP) host an FA Symposium in the Philadelphia area.

This is a free day-long event filled with presentations for people living with FA and their families, with the option to participate in-person or virtually. The Symposium agenda includes information on clinical management, current research in FA, and other valuable insights for participants.

Newly diagnosed or first-time attendees are encouraged to join a special welcome session. This is a chance to get to know others in the community and speak with FARA team members.

View last year’s Symposium
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Upcoming Educational Events

EVENT | May 21 2026

FARA Flash Talk #2

Join us this May for our annual FARA Flash Talks webinar series! Each session will consist of Flash Talks from FARA Graduate Research Fellowship recipients and FARA Fellows, moderated by FA community members. Learn more about some of the ongoing FA research projects made possible by your fundraising efforts. The talks are suitable for a lay audience. A brief Q&A will follow each talk.

Education
Virtual
EVENT | May 26 2026

An Informational Webinar with Solid Biosciences

Join Solid Biosciences for an informational webinar on Tuesday, May 26 at 12 PM ET for people living with FA and their families. Matthew Harmelink, MD, Therapeutic Area Head of Neuromuscular, and Seth Rotberg, Senior Manager of Patient Advocacy, will provide an update about Solid's FALCON gene therapy (SGT-212) phase 1b study.

Education
Virtual
EVENT | Jun 13 2026

Oklahoma City FA Research Reception

Education
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Oct 12 2026

FARA & CHOP FA Symposium

Save the date! This is a free day-long event filled with presentations for people living with FA and their families, with the option to participate in-person or virtually. More information to come.

Education

Join FARA’s Community Newsletter

Stay up to date on the latest educational events for the FA community and more. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Choose your preferences with the form to the right and you’ll be on your way to staying connected and informed.

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