Fundraising & Events

Fundraisers are one way community members can contribute to FA research. Each gathering fuels critical research and paves the way to bring treatments and cures to the FA community. FARA hosts fundraisers all over the United States, such as the glamorous Energy Ball in Tampa, FL and the nationwide cycling series rideATAXIA.  Dedicated volunteers also host local events as part of FARA’s grassroots program.

Can’t find an event near you? FARA’s fundraising team empowers individuals and groups to plan community events—from dinner parties to 5k walks to drive-in movies.

Learn About FARA Fundraising & Events
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Upcoming Events

EVENT | Aug 16 2025

8th Annual Race for Matt & Grace Golf Tournament

Golf tournament benefitting The Race for Matt & Grace, Inc.

Grassroots
Valley Country Club, Warwick
EVENT | Aug 17 2025

Softball Clinic for a Cause

Run by Paige Kussman, former D3 Coach and Personal Trainer. Hosted by Fury Platinum 14U Slaught.

Grassroots
Bolen Park Field #4, Leesburg, Virginia
EVENT | Aug 24 2025

Team FARA: Liam Kruesi Aquabike Race

Team FARA Member Liam Kruesi will be the first person living with FA to race in the Aquabike of the Fort De Soto Triathlon Series in St. Petersburg, FL.

Grassroots
Fort De Soto Park, St. Petersburg
EVENT | Sep 7 2025

Fuzzy Buzzy Charity Golf Tournament 2025

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots
Windham Country Club, Windham, New Hampshire
EVENT | Sep 12 2025

Tee It up Fall Flower Sale Delivery Day

Decorate your gardens with Mums, Celosia aka Cockscomb, Ornamental Cabbage/Kale, Ornamental Peppers, Pumpkins and Gourds. Your purchase will make a difference for all living with Alzheimer’s/dementia “ALZ” and Friedreich’s ataxia “FA”.

Grassroots
Grandview Heights and Marble Cliff
EVENT | Sep 13 2025

Teeing Up for Tye

Teeing Up for Tye is a golf tournament in memory of Tye Bell, inspired by his passion for golf. Funds from Teeing Up for Tye will benefit the Tye Bell Memorial Scholarship and FARA.

Grassroots
Mill Creek Country Club, Salado, Texas
EVENT | Sep 13 2025

rideATAXIA Hometown Cleveland

Ride along the beautiful Cleveland Metroparks towpath to help CURE FA!

rideATAXIA
EVENT | Sep 17 2025

7th United Against Ataxia Hill Day

Advocacy
Virtual
EVENT | Sep 20 2025

Race for Matt & Grace

This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.

Grassroots
Rhode Island College, Providence
EVENT | Sep 21 2025

rideATAXIA Hometown Twin Cities

Join us this September for a family-friendly ride along the Mississippi River Greenway Trail!

rideATAXIA
Schaar’s Bluff Gathering Center, Hastings
EVENT | Sep 27 2025

USF Research Reception Brunch

The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
USF Health Morsani College of Medicine & Heart Institute, Tampa
EVENT | Sep 27 2025

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
Tampa Marriott Water Street, Tampa, Florida

Connect

FARA fosters a vibrant community, offering both in-person and virtual ways to connect so you can find support and strength on your journey. Connect in-person or virtually with families and individuals with FA or learn more directly from the professionals at one of FARA’s educational events.

Make a Connection
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FARA Ambassador Program

The FARA Ambassador Program is a united volunteer team of individuals living with FA. FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their dedicated support of FARA is key to continued success toward FARA’s ultimate goal of treatments and cures for FA.

Team of pople at event

Ways to Give

FARA is committed to advancing research towards meaningful therapeutics for Friedreich’s ataxia. Because FARA focuses its funding solely on carefully vetted research, each donation fuels the very engine driving progress in the search for treatments and cures – a testament to the collective power of compassion and action.

From small monthly donations through the Pathway program to employer-matched donations, there are many ways to give that suit any budget or financial situation.

Group of children in fancy dress

Participate in Research

Individuals with FA can be powerful partners in research. Sharing your experiences and data through research studies helps scientists learn more about FA and moves us closer to new treatments and cures.

Studies come in different forms, some simply observing the progression of the disease (natural history studies), while others test new treatment options (interventional clinical trials). Regardless of the type, participation is crucial to advancing research.

Participate in Research
young girl in hospital

Advocate

The most effective voice in making change is yours. Public policy and legislation can impact research, drug development, drug approvals, patient access to approved medications and health care, and more. By using your voice to advocate for the FA community, you are advancing FARA’s mission to expedite treatments for FA.

Learn About FA Advocacy
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Join FARA’s Community Newsletter

Stay up to date with the latest updates at FARA and in the whole FA community. FARA offers monthly newsletters for community members, researchers, FA advocates, and more. Sign up today and you’ll be on your way to staying connected and informed.

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