MESSAGE FOR FA FAMILIES

Dear FA family,

Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.

The FA Community is an active and supportive one. Together, we fund and facilitate research to slow, stop, reverse, and cure Friedreich’s ataxia (FA). We hope there is comfort in knowing you are not alone. Visit our Understanding FA section to help you to learn about and manage FA.
Visit Understanding FA
Community members and researchers at the Napierala Lab at UT Southwestern.
LIFE CHANGING RESEARCH

Leading to the discovery and advancement of treatments for FA

Join a passionate community and change the course of this rare disease

We work in collaboration and with a sense of urgency to build strong relationships, expand knowledge, and remove uncertainty.
Two women looking at a presentation
FUNDING

Apply for a research grant and make an impact

FARA funds a competitive, peer-reviewed grant program.

COLLABORATION

Work with an experienced research community

FARA fosters meaningful relationships, helping to develop new life changing treatments for FA.

KNOWLEDGE

Utilize FARA resources to help optimize the pace of research

Benefit from our thriving and experienced research community and utilize our extensive resource library.

Visit Research section
FARA NEWS

Latest news from our community.

News
| May 30, 2024

Larimar Therapeutics Selected by FDA to Participate in START Pilot Program for Nomlabofusp in Friedreich’s Ataxia

Industry News
News
| May 20, 2024

Larimar Therapeutics Announces FDA has Removed Partial Clinical Hold for Nomlabofusp Program in Friedreich’s Ataxia

Industry News, Partner News
News
| May 8, 2024

Design Therapeutics Announces First Quarter 2024 Financial Results and Highlights Upcoming Program Milestones

Industry News
News
| Apr 25, 2024

Astellas shares that US FDA cleared their IND with Fast Track designation for Phase 1 trial of their investigational gene therapy for the treatment of cardiomyopathy in FA

Industry News
News
| Apr 22, 2024

Lexeo Therapeutics Announces License Agreement to Accelerate Development of LX2006 for the Treatment of Friedreich Ataxia Cardiomyopathy

Industry News
News
| Apr 16, 2024

Lexeo Therapeutics Granted FDA Fast Track Designation for LX2006, an AAV-Based Gene Therapy Candidate for the Treatment of Friedreich's Ataxia Cardiomyopathy

Industry News
News
| Mar 19, 2024

Design Therapeutics Outlines Progress Across GeneTAC™ Platform and Announces Fourth Quarter and Full Year 2023 Financial Results

Industry News, Partner News
News
| Mar 19, 2024

March 2024- Advocacy Newsletter

Advocacy
News
| Mar 11, 2024

Larimar Therapeutics Announces the Dosing of the First Patient in Long-term Open Label Extension Study for Nomlabofusp in Patients with Friedreich’s Ataxia

Industry News, Partner News
News
| Mar 4, 2024

FA Community Update from Biogen

Industry News
News
| Feb 28, 2024

February 2024 – Advocacy Newsletter

Advocacy
News
| Feb 26, 2024

Voyager Therapeutics Announces Selection of Gene Therapy Development Candidate for Friedreich’s Ataxia in Collaboration with Neurocrine Biosciences, Triggering Milestone Payment

Industry News
FARA events

Our upcoming events.

EVENT
| Jun 28 2024

Fine Arts for FA: Rock of Ages

Musical performance put on put on entirely by students from the Sioux Falls area.

Grassroots, O’Gorman High School
EVENT
| Jun 29 2024

Team FARA Himalayas - The Highest Road

In June 2024 Team FARA, on bikes and trikes, will ride up the highest paved road in the world – in a remote part of Northern India. Umling La, 19,300 ft.

TeamFARA, Umling La
EVENT
| Jun 29 2024

Fine Arts for FA: Rock of Ages

Musical performance put on put on entirely by students from the Sioux Falls area.

Grassroots, O’Gorman High School
EVENT
| Jun 30 2024

Fine Arts for FA: Rock of Ages

Musical performance put on put on entirely by students from the Sioux Falls area.

Grassroots, O’Gorman High School
EVENT
| Jul 14 2024

rideATAXIA Hometown Boston

Registration now open!

rideATAXIA, Lexington
EVENT
| Jul 19 2024

42nd Annual Claxton Classic Golf Tournament

Grassroots, Compass Pointe Golf Course
EVENT
| Jul 20 2024

FA Research Reception Chicago

FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education, Lisle
EVENT
| Jul 21 2024

rideATAXIA Chicago

Registration now open!

rideATAXIA, Channahon
EVENT
| Jul 26 2024

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area.

Grassroots, Lincoln High School
EVENT
| Jul 27 2024

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area.

Grassroots, Lincoln High School
EVENT
| Aug 2 2024

Daniel Price Streaming Live

The Friedreichs ataxia community outreach Facebook Group will host a one hour live music performance to raise money to help fund research for FARA. Music will be Electronic Dance/Ambient soundscapes by Daniel Price. Music will be performed via Facebook live broadcast. This event is available online to the general public and is suitable for all ages.

Grassroots, Virtual
EVENT
| Aug 11 2024

Rock 'N' Jock Charities: Night of Entertainment

Grassroots, Garden Pavilion, Crowne Plaza