MESSAGE FOR FA FAMILIES

Dear FA family,

Although the circumstances of our meeting are difficult, we are glad that you have found the Friedreich's Ataxia Research Alliance.

The FA Community is an active and supportive one. Together, we fund and facilitate research to slow, stop, reverse, and cure Friedreich’s ataxia (FA). We hope there is comfort in knowing you are not alone. Visit our Understanding FA section to help you to learn about and manage FA.
Visit Understanding FA
Community members and researchers at the Napierala Lab at UT Southwestern.
LIFE CHANGING RESEARCH

Leading to the discovery and advancement of treatments for FA

Join a passionate community and change the course of this rare disease

We work in collaboration and with a sense of urgency to build strong relationships, expand knowledge, and remove uncertainty.
Two women looking at a presentation
FUNDING

Apply for a research grant and make an impact

FARA funds a competitive, peer-reviewed grant program.

COLLABORATION

Work with an experienced research community

FARA fosters meaningful relationships, helping to develop new life changing treatments for FA.

KNOWLEDGE

Utilize FARA resources to help optimize the pace of research

Benefit from our thriving and experienced research community and utilize our extensive resource library.

Visit Research section
FARA NEWS

Latest news from our community.

News
| Jul 16, 2024

FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable

Advocacy, FARA News
News
| Jul 16, 2024

2023 Donor Impact Report

FARA News
News
| Jul 15, 2024

LEXEO Therapeutics Announces Positive Interim Phase 1/2 Clinical Data of LX2006 for the Treatment of Friedreich Ataxia Cardiomyopathy

Industry News
News
| Jun 18, 2024

C-Path Partners with FARA to Fortify RDCA-DAP and Further Accelerate Drug Development with new Friedreich’s Ataxia Data

Partner News
News
| May 30, 2024

Larimar Therapeutics Selected by FDA to Participate in START Pilot Program for Nomlabofusp in Friedreich’s Ataxia

Industry News
News
| May 20, 2024

Larimar Therapeutics Announces FDA has Removed Partial Clinical Hold for Nomlabofusp Program in Friedreich’s Ataxia

Industry News
News
| May 17, 2024

The Oxford-Harrington Rare Disease Centre Announces Newly Funded Grant Award Programmes to Develop New Therapies for Friedreich’s Ataxia

Partner News
News
| May 8, 2024

Design Therapeutics Announces First Quarter 2024 Financial Results and Highlights Upcoming Program Milestones

Industry News
News
| Apr 25, 2024

Astellas shares that US FDA cleared their IND with Fast Track designation for Phase 1 trial of their investigational gene therapy for the treatment of cardiomyopathy in FA

Industry News
News
| Apr 22, 2024

Lexeo Therapeutics Announces License Agreement to Accelerate Development of LX2006 for the Treatment of Friedreich Ataxia Cardiomyopathy

Industry News
News
| Apr 17, 2024

Muscular Dystrophy Association and Friedreich’s Ataxia Research Alliance Announce Collaborative Research Grant Using Novel Gene Editing Technology to Address Root Cause of Friedreich’s Ataxia Disease

Partner News
News
| Apr 16, 2024

Lexeo Therapeutics Granted FDA Fast Track Designation for LX2006, an AAV-Based Gene Therapy Candidate for the Treatment of Friedreich's Ataxia Cardiomyopathy

Industry News
FARA events

Our upcoming events.

EVENT
| Jul 19 2024

42nd Annual Claxton Classic Golf Tournament

Grassroots, Compass Pointe Golf Course
EVENT
| Jul 20 2024

FA Research Reception Chicago

FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education, Hyatt Regency Lisle
EVENT
| Jul 21 2024

rideATAXIA Chicago

Registration now open!

rideATAXIA, Channahon Central Park
EVENT
| Jul 26 2024

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area.

Grassroots, Lincoln High School
EVENT
| Jul 27 2024

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area.

Grassroots, Lincoln High School
EVENT
| Aug 2 2024

Daniel Price Streaming Live

The Friedreich's ataxia community outreach Facebook Group will host a one-hour live music performance to raise money to help fund research for FARA. Music will be Electronic Dance/Ambient soundscapes by Daniel Price. Music will be performed via Facebook live broadcast. This event is available online to the general public and is suitable for all ages.

Grassroots, Virtual
EVENT
| Aug 11 2024

Rock 'N' Jock Charities: Night of Entertainment

Grassroots, Garden Pavilion, Crowne Plaza
EVENT
| Aug 12 2024

Rock 'N' Jock Charities: Golf Tournament

Grassroots, Potowomut Golf Club
EVENT
| Aug 24 2024

FA Research Reception Tacoma

Registration, hotel block, and full agenda will be available soon.

Education, Hotel Murano
EVENT
| Sep 8 2024

Fuzzy Buzzy Charity Golf Tournament

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots, Windham
EVENT
| Sep 13 2024

Golf-ATAXIA 18 Hole Scramble

Grassroots, Brentwood Golf Club
EVENT
| Sep 14 2024

rideATAXIA Hometown Twin Cities

rideATAXIA, Wakefield Park Community Building