This designation is important to raising awareness of ataxia, ataxia research, and the search for a cure.
The Friedreich’s Ataxia Research Alliance (FARA) and the National Ataxia Foundation (NAF) are pleased to announce that Congress has once again designated September 25 as National Ataxia Awareness Day. This annual recognition helps raise awareness of ataxia, a group of degenerative neurological disorders that affect balance, coordination, and speech.
The resolution (S.Res. 794), sponsored by Senator Hyde-Smith (MS) and cosponsored by Senators Stabenow (MI), Moore Capito (WV), and Murphy (CT), will help break down barriers faced by individuals and families living with ataxia, a rare condition that is often unfamiliar to many. By increasing public awareness, FARA and NAF aim to accelerate research efforts and development of effective treatments.
ABOUT FARA
The Friedreich’s Ataxia Research Alliance (FARA) is a non-profit organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/biotech drug development, clinical trials, and scientific conferences. FARA is also dedicated to bringing the patient voice to the drug development process by connecting FA families with the scientific community to create worldwide exchanges of information that drive medical advances. For more information about FARA, visit curefa.org.
ABOUT NAF
The National Ataxia Foundation (NAF) was established in 1957 to help persons with Ataxia and their families. Our mission is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia. NAF’s vision of a world without Ataxia will be accomplished through our primary programs of funding Ataxia research, providing vital programs and services for Ataxia families, and partnering with pharmaceutical companies in the search for treatments and a cure. For more information, visit ataxia.org.