News & Blog

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News | Jun 5 2025

Webinar Recording: Biogen May 2025 Update

FARA News | Industry News
News | Jun 5 2025

Webinar Recording: Lexeo Therapeutics May 2025 Update

FARA News | Industry News
News | Jun 4 2025

Design Therapeutics Announces Start of Friedreich Ataxia Patient Dosing Ex-U.S. in its RESTORE-FA Phase 1/2 Multiple-Ascending Dose Trial of DT-216P2

Industry News
News | Jun 3 2025

Gehr Family shares their FA journey, how they raise awareness of Friedreich’s ataxia, and the upcoming Cure FA Soirée with local media outlets

Industry News
Blog | Jun 2 2025

Meet the Community: Alyssa Hammers

Community
Blog | May 27 2025

Meet the Community: Christi Wilson

Community
Blog | May 19 2025

Meet the Community: Talia Cassel

Community
Blog | May 13 2025

Participating in Research: Marc and Maggie Likins

Community
News | May 7 2025

Community Statement: Biogen announces BRAVE Phase 3 Pediatric Study of Omaveloxolone

Industry News
Blog | May 5 2025

Meet the Community: Natalie Rex

Community
News | May 2 2025

April/May 2025 – Advocacy Newsletter

Advocacy
Blog | Apr 28 2025

Meet the Community: Paul Hardwick

Community