News & Blog

News & Blog

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Blog | May 19 2025

Meet the Community: Talia Cassel

Community
Why We Participate in Research: Likins Family. Photo of Likins Family (Marc and Maggie and four children)
Blog | May 13 2025

Participating in Research: Marc and Maggie Likins

Community
News | May 7 2025

Community Statement: Biogen announces BRAVE Phase 3 Pediatric Study of Omaveloxolone

Industry News
Photo of Natalie Rex
Blog | May 5 2025

Meet the Community: Natalie Rex

Community
Advocacy Newsletter Hero Image
News | May 2 2025

April/May 2025 – Advocacy Newsletter

Advocacy
Photo of Paul Hardwick
Blog | Apr 28 2025

Meet the Community: Paul Hardwick

Community
News | Apr 23 2025

Webinar Recording: Solid Biosciences April 2025 Update

FARA News | Industry News
Image of Joe Tyler and wife that says,
Blog | Apr 22 2025

Participating in Research: Joe Tyler

Community
Photo of Sydni Dupre
Blog | Apr 21 2025

Meet the Community: Sydni Dupre

Community
Group photo from rideATAXIA Gainesville 2025
Blog | Apr 14 2025

2025 rideATAXIA Gainesville Recap

Events
News | Apr 9 2025

Press Release & Community Update: Lexeo Therapeutics Announces Positive Interim Phase 1/2 Data for LX2006 in Friedreich Ataxia Cardiomyopathy Supporting Advancement to Registrational Study

Industry News
Photo of Natalija Stanojevic
Blog | Apr 7 2025

Meet the Community: Natalija Stanojevic

Community