News & Blog

News & Blog

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Blog | Oct 14 2024

2024 rideATAXIA Hometown Twin Cities, MN Recap

Events
News | Oct 8 2024

PTC Therapeutics Announces Positive Results from Long-Term Treatment Studies and Updates on Regulatory Progress for Vatiquinone Friedreich Ataxia Program

Industry News
Blog | Oct 4 2024

Meet the Community 2: A Closer Look — Alijana Shakya 

Community
News | Sep 26 2024

September 2024 – Advocacy Newsletter

Advocacy
Blog | Sep 23 2024

Meet the Community 2: A Closer Look – Alex Fielding

Community
News | Sep 20 2024

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

Advocacy
News | Sep 17 2024

Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich’s Ataxia

Industry News
Blog | Sep 16 2024

Meet the Community: Allison Rice

Community
News | Sep 11 2024

Stealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia

FARA News | Industry News | Research
News | Sep 10 2024

Meet the 2024 FARA Fellows

FARA News | Research
Blog | Sep 9 2024

Meet the Community: Anthony Monaco

Community