Upcoming Events

EVENT | Sep 3 2026

Living Life Happily: Access to a Cure

Living Life Happily: Access to a Cure, hosted by hosted by Peace Love ACCESSibility, brings our community together to support accessibility, inclusion, and research for a cure for people living with Friedreich’s ataxia.

Grassroots
The Owenego, Branford, Connecticut
EVENT | Sep 11 2026

Tee It Up - Fall Flower, Pumpkin & Gourd Pick-Up

Purchase fall flowers, pumpkins and gourds to make a difference! Your purchase will make a difference for all living with Alzheimer’s/dementia “ALZ” and Friedreich’s ataxia “FA”.

Grassroots
1350 Arlington Avenue, Columbus, Ohio
EVENT | Sep 11 2026

GolfATAXIA

Proceeds from the GolfATAXIA Scramble will support the Friedreich’s Ataxia Research Alliance (FARA) in their efforts to find treatments and cures for FA

Grassroots
Brentwood Golf Club, White Lake, Michigan
EVENT | Sep 12 2026

Teeing Up for Tye

Teeing Up for Tye is a golf tournament in memory of Tye Bell, inspired by his passion for golf. Funds from Teeing Up for Tye will benefit the Tye Bell Memorial Scholarship and FARA.

Grassroots
Mill Creek Country Club, Salado, Texas
EVENT | Sep 13 2026

Fuzzy Buzzy Charity Golf Tournament

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots
Windham Country Club, Windham, New Hampshire
EVENT | Sep 19 2026

rideATAXIA Hometown St. Louis

Join us Saturday, September 19th for a ride/walk to benefit FARA! Registration to open in June 2026.

rideATAXIA
Hammerstone’s, St. Louis, Missouri
EVENT | Sep 19 2026

rideATAXIA Hometown Twin Cities

Join us Saturday, September 19 for a family-friendly ride along the Mississippi River Greenway Trail!

rideATAXIA
West Shelter – Spring Lake Park Reserve, Hastings, Minnesota
EVENT | Sep 20 2026

Team FARA: Rare Link Triathlon Relay

Team FARA's Rare Link, led by Liam Kruesi, will be completing a triathlon relay-style.

Grassroots
Bayview Park, Long Beach, New Jersey
EVENT | Sep 26 2026

Race for Matt & Grace

5K and Family Fun Walk to cure FA

Grassroots
Rhode Island College, Providence
EVENT | Oct 11 2026

rideATAXIA Philly 2026

Join us at Montgomery County Community College for an amazing day with our FAmily. Choose between a 3-, 6-, 26-, or 46-mile ride, or a 1.5-mile walk/ride on campus – there's something for everyone! After your ride, join us for an awesome celebration of your fundraising efforts to help find treatments and cures for FA.

rideATAXIA
Montgomery County Community College, Blue Bell, Pennsylvania
EVENT | Oct 12 2026

FARA & CHOP FA Symposium

Save the date! This is a free day-long event held in King of Prussia, Pennsylvania, filled with presentations for people living with FA and their families, with the option to participate in-person or virtually.

Education
EVENT | Oct 17 2026

USF Research Reception Brunch

The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
USF Health Morsani College of Medicine & Heart Institute, Tampa

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses