Upcoming Events

EVENT | Aug 9 2026

Rock 'N' Jock Charities: Night of Entertainment

A Night of Entertainment featuring Steve Smith and The Nakeds with special guests, a silent auction, dinner, drinks and dancing.

Grassroots
The Crowne Plaza Warwick, Warwick
EVENT | Aug 9 2026

Rock 'N' Jock Charities: Golf Tournament

Golf Tournament benefitting FARA and A Wish Come True.

Grassroots
Potowomut Golf Club, East Greenwich
EVENT | Aug 11 2026

rideATAXIA Hometown — rideWILD: Haleakala

In Support of Friedreich's ataxia (FA) research, on August 11, 2026, we will ride our bikes to the top of a Volcano in Hawaii. Haleakala - Sea Level to 10,000' in 35 miles.

rideATAXIA Hometown
Haleakala, Maui, Hawaii
EVENT | Aug 15 2026

Saddle Up for FARA

Join the Edmonson Family for cocktails, dinner, and an exclusive trunk show with luxury western vendors flying in from across the country.

Grassroots
Bear Hill Cattle Company, Dade City
EVENT | Aug 20 2026

Community Conversations: FDA’s Accelerated Approval Pathway

Join us on Thursday, August 20, at 12 PM ET for FARA’s next Community Conversations webinar. This session will explore the FDA’s Accelerated Approval pathway and its role in advancing treatments for Friedreich's ataxia.

Education
Virtual
EVENT | Aug 22 2026

Sweet Caroline's 21 for FARA

Join us for a night of music and celebration to raise funds for the Friedreich's Ataxia Research Alliance (FARA)! Hosted by the Smith Family. Featuring Blackberry Breeze.

Grassroots
Choctafaula Ranch, Auburn, Alabama
EVENT | Aug 23 2026

rideATAXIA Hometown Cleveland

Join us on Saturday, August 23 for rideATAXIA Hometown Cleveland! Registration to open in June.

rideATAXIA
Berea, OH
EVENT | Sep 3 2026

Living Life Happily: Access to a Cure

Living Life Happily: Access to a Cure, hosted by hosted by Peace Love ACCESSibility, brings our community together to support accessibility, inclusion, and research for a cure for people living with Friedreich’s ataxia.

Grassroots
The Owenego, Branford, Connecticut
EVENT | Sep 11 2026

Tee It Up - Fall Flower, Pumpkin & Gourd Pick-Up

Purchase fall flowers, pumpkins and gourds to make a difference! Your purchase will make a difference for all living with Alzheimer’s/dementia “ALZ” and Friedreich’s ataxia “FA”.

Grassroots
1350 Arlington Avenue, Columbus
EVENT | Sep 11 2026

GolfATAXIA

Proceeds from the GolfATAXIA Scramble will support the Friedreich’s Ataxia Research Alliance (FARA) in their efforts to find treatments and cures for FA

Grassroots
Brentwood Golf Club, White Lake
EVENT | Sep 12 2026

Teeing Up for Tye

Teeing Up for Tye is a golf tournament in memory of Tye Bell, inspired by his passion for golf. Funds from Teeing Up for Tye will benefit the Tye Bell Memorial Scholarship and FARA.

Grassroots
Mill Creek Country Club, Salado, Texas
EVENT | Sep 13 2026

Fuzzy Buzzy Charity Golf Tournament

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots
Windham Country Club, Windham, New Hampshire

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses