Upcoming Events

EVENT | May 22 2025

An Informational Session with Biogen

Education
Virtual
EVENT | May 28 2025

FARA Flask Talks Session #2

Education
EVENT | Jun 6 2025

Fine Arts for FA: Shrek the Musical

SHREK THE MUSICAL is presented through special agreement with Musical Theatre International (MTI). All authorized performance materials are also supplied by MTI. www.mtishows.com Book and Lyrics by David Lindsay-Abaire. Music by Jeanine Tesori. Originally produced on Broadway by DreamWorks Theatricals and Neal Street Productions.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jun 7 2025

FA Research Reception – Oklahoma City, OK

More details TBD. This is a free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
Vast OKC, Oklahoma City, Oklahoma
EVENT | Jun 7 2025

Go Hog Wild for FARA!

Go Hog Wild for FARA! $40 includes full meal with pig and sides, hamburgers, and hotdogs. Children under 12 free.

Grassroots
Portuguese American Social Club, Smithfield, Rhode Island
EVENT | Jun 7 2025

Cure FA Soirée

The 8th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.

Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Jun 7 2025

Fine Arts for FA: Shrek the Musical

SHREK THE MUSICAL is presented through special agreement with Musical Theatre International (MTI). All authorized performance materials are also supplied by MTI. www.mtishows.com Book and Lyrics by David Lindsay-Abaire. Music by Jeanine Tesori. Originally produced on Broadway by DreamWorks Theatricals and Neal Street Productions.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jun 8 2025

Fine Arts for FA: Shrek the Musical

SHREK THE MUSICAL is presented through special agreement with Musical Theatre International (MTI). All authorized performance materials are also supplied by MTI. www.mtishows.com Book and Lyrics by David Lindsay-Abaire. Music by Jeanine Tesori. Originally produced on Broadway by DreamWorks Theatricals and Neal Street Productions.

Grassroots
O’Gorman High School, Sioux Falls
EVENT | Jun 29 2025

rideATAXIA Hometown Boston

Join our local Boston committee for a family-friendly ride along the original battlefields where the Revolutionary War began! The Boston FA community has a strong history of raising funds for FA research. This will be our third annual rideATAXIA Hometown Boston event.

rideATAXIA
Lexington Visitors Center, Lexington, Massachusetts
EVENT | Jul 18 2025

43rd Annual Claxton Classic Golf Tournament

Golf tournament. Entry includes breakfast, green fees, cart, driving range, and lunch.

Grassroots
Compass Pointe Golf Course, Pasadena, Maryland
EVENT | Jul 20 2025

rideATAXIA Chicago 2025

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
EVENT | Jul 25 2025

Fine Arts for FA: Curtain Call for a Cure

Curtain Call for a Cure is a cabaret filled with musical numbers from everyone’s favorite broadway shows, put on entirely by students from the Sioux Falls area. This year’s show will feature fan favorites from past FA4FA performances, in honor of the program’s 10th anniversary.

Grassroots
O’Gorman High School, Sioux Falls

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses