Upcoming Events

EVENT | Feb 28 2026

Rare Disease Day

Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.

Advocacy
Global
EVENT | Mar 7 2026

Hope for ToMORROW

Join Hope for ToMORROW to celebrate FARA and its contributions to research for Friedreich's Ataxia.

Grassroots
The Bryn Mawr School, Baltimore, Maryland
EVENT | Mar 14 2026

Houston FA Research Reception

This is a free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
Embassy Suites by Hilton The Woodlands® at Hughes Landing, The Woodlands
EVENT | Apr 11 2026

rideATAXIA Hometown Lake Charles

We invite you to join us for a fun 3-mile ride at Sam Houston Jones State Park and celebrate your fundraising efforts with teammates.

rideATAXIA
Sam Houston Jones State Park, Lake Charles, Louisiana
EVENT | Apr 24 2026

Torrance FA Research Reception

The Friedreich's Ataxia Research Alliance (FARA) will host a half-day FA Research Reception on April 24 at the Torrance Marriott Redondo Beach in Torrance, CA.

Education
Torrance Marriott Redondo Beach, Torrance, California
EVENT | Apr 25 2026

BBQ Love Fest

The 3rd Annual BBQ Love Fest fires up the grills once again for a day of mouthwatering barbecue, live music, and community spirit in Tampa, April 25th, 2026!

Grassroots
Perry Harvey Sr. Park, Tampa
EVENT | May 9 2026

rideATAXIA Hometown Chico

Join us on May 9 for a pre-Mother's Day family-friendly ride!

rideATAXIA
Bidwell Park, Chico, California
EVENT | May 9 2026

New Jersey Seaside Stride

SAVE THE DATE! The NJ Seaside Stride is a fun, family-oriented event hosted by NJ families working to raise awareness and research funds for FA. The event features a walk on the boardwalk, lunch, and gift auction. More info to come.

Grassroots
Tri-Boro First Aid Squad, Seaside Park, New Jersey
EVENT | May 11 2026

rideATAXIA Hometown Danville

rideATAXIA
Danville, CA, Danville, California
EVENT | Jun 13 2026

Cure FA Soirée

The 9th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.

Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Jul 19 2026

rideATAXIA Chicago 2026

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
EVENT | Sep 3 2026

Peace Love ACCESSibility Event

Save the date for the Peace Love ACCESSibility event coming to Branford, CT, this September! More information to come.

Grassroots
The Owenego, Branford, Connecticut

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses