Upcoming Events

EVENT | Sep 20 2025

rideATAXIA Hometown St. Louis

Join us Saturday September 20th in Soulard for a ride/walk to benefit FARA!

rideATAXIA
Hammerstone’s, Saint Louis, Missouri
EVENT | Sep 20 2025

Race for Matt & Grace

This daylong event features a 5K, 1.5 Mile Fun Walk and an after-party with food and live entertainment.

Grassroots
Rhode Island College, Providence
EVENT | Sep 20 2025

Fall for FARA to benefit rideATAXIA Team Megan

Fall for FARA is an event featuring food, auctions, games and a cornhole tournament to benefit Team Megan at rideATAXIA Philly.

rideATAXIA
Pelham Falls Clubhouse, Greer
EVENT | Sep 21 2025

rideATAXIA Hometown Twin Cities

Join us this September for a family-friendly ride along the Mississippi River Greenway Trail!

rideATAXIA
Schaar’s Bluff Gathering Center, Hastings
EVENT | Sep 27 2025

USF Research Reception Brunch

The Friedreich’s Ataxia Research Alliance (FARA) is pleased to present this free, in-person educational event for the FA community. FA Research Receptions provide individuals and families affected by FA with up-to-date information about Friedreich’s ataxia research and an opportunity to meet others in the community.

Education
USF Health Morsani College of Medicine & Heart Institute, Tampa
EVENT | Sep 27 2025

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
Tampa Marriott Water Street, Tampa, Florida
EVENT | Sep 28 2025

Fuzzy Buzzy Charity Golf Tournament 2025

The Fuzzy Buzzy Charity Golf Tournament is an annual event held every year since 1986.

Grassroots
Windham Country Club, Windham, New Hampshire
EVENT | Oct 4 2025

Epic Game Day

The most epic of game days - to benefit FARA. The event will feature food, free-play games, and tournaments.

Grassroots
Natural Twenty Games, Henderson
EVENT | Oct 4 2025

World Renowned Magician Chris Dugdale Benefit Performance

Magic show to benefit FARA with Chris Dugdale, world renown magician/mentalist, featured on Penn and Teller, Las Vegas shows, and many worldwide television shows.

Grassroots
Calvary United Methodist Church, Annapolis, Maryland
EVENT | Oct 12 2025

rideATAXIA Philly 2025

Join us at Montgomery County Community College for an amazing day with our FAmily. Choose between a 4-, 8-, 26-, or 46-mile ride, or a 1.5-mile walk/ride on campus – there's something for everyone!

rideATAXIA
Montgomery County Community College, Blue Bell, Pennsylvania
EVENT | Oct 13 2025

FARA & CHOP FA Symposium

This is a free day-long event filled with presentations for people living with FA and their families, with the option to participate in-person or virtually. The Symposium agenda includes information on clinical management, current research in FA, and other valuable insights for participants.

Education
Crowne Plaza – King of Prussia, King of Prussia, Pennsylvania
EVENT | Oct 24 2025

Mattoberfest

Enjoy an Octoberfest event for FARA in Matt DiIorio's memory. Cornhole & food truck available.

Grassroots
Ravenous Brewing Company, Cumberland

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses