Upcoming Events

EVENT | Nov 2 2025

Team FARA: TCS New York City Marathon

FARA is an Official Charity Partner for the 2025 TCS New York City Marathon. Six members of Team FARA will run the marathon to redefine what is possible when we work together towards a common goal- treatments and a cure for Friedreich's ataxia (FA).

Grassroots
new york, New York
EVENT | Nov 8 2025

rideATAXIA Dallas 2025

Get ready for an amazing day at Lewisville Railroad Park! Whether you're up for a 15, 10, or 4.5-mile ride, or a 1.5-mile walk/ride, there's something for everyone.

rideATAXIA
Lewisville Railroad Park, Lewisville, Texas
EVENT | Nov 15 2025

Poker Run to Cure FA

Hop in your car, jeep, or any motorized vehicle and enjoy a scenic drive around eastern Oklahoma for FA! Collect poker chips along the way for a chance to score big for FARA.

Grassroots
Armstrong Park – Vian Community Center, Vian
EVENT | Feb 28 2026

Rare Disease Day

Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.

Advocacy
Global

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses