Upcoming Events

EVENT | Dec 14 2025

Kendra Scott Gives Back In-Store Event

Join us for a Kendra Scott Giveback Event to support FARA & the Cure FA Soirée! Shop their stunning jewelry collection IN-PERSON on Dec. 14th 2-4pm at the Spring Creek Plaza. Mention the Cure FA Soirée at the register!

Grassroots
Kendra Scott – Spring Creek Plaza, Edmond
EVENT | Dec 16 2025

FA Community Conversations: FA Cardiac Disease

Join us on Tuesday, December 16, at 7pm ET for a conversation about FA cardiac disease. In this session, learn more about the symptoms and clinical management of FA cardiac disease plus ongoing research that's helping scientists and clinicians learn more about the FA heart.

Education
Virtual
EVENT | Feb 14 2026

Pull for a Cure

Join FARA and Hunters & Liars for a day of clay shooting, auctions, dinner and fellowship in support of a great cause!

Grassroots
Tampa Bay Sporting Clays, Land O' Lakes, Florida
EVENT | Feb 28 2026

Rare Disease Day

Rare Disease Day is a global movement to raise awareness of rare diseases and work towards equity in health care, particularly access to diagnosis and approved treatments for people living with a rare disease. Since its inception, thousands of Rare Disease Day events have taken place across the world, reaching millions of people and fostering a growing public understanding of rare diseases and the high unmet medical need of this community.

Advocacy
Global
EVENT | Mar 7 2026

Hope for ToMORROW

Join Hope for ToMORROW to celebrate FARA and its contributions to research for Friedreich's Ataxia.

Grassroots
The Bryn Mawr School, Baltimore, Maryland
EVENT | Apr 25 2026

Tampa Bay Kids Triathlon

The TBKT offers youth athletes, experienced and first-timers alike, the unique opportunity to swim, bike and run in and around Busch Gardens’® premier water park, Adventure Island.

Grassroots
Adventure Island, Tampa, Florida
EVENT | Apr 25 2026

BBQ Love Fest

The 3rd Annual BBQ Love Fest fires up the grills once again for a day of mouthwatering barbecue, live music, and community spirit in Tampa, April 25th, 2026!

Grassroots
Perry Harvey Sr. Park, Tampa
EVENT | Jun 13 2026

Cure FA Soirée

The 9th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.

Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Jul 19 2026

rideATAXIA Chicago 2026

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
EVENT | Oct 11 2026

rideATAXIA Philly 2026

Save the date for rideATAXIA Philly! More details to come soon!

rideATAXIA
Montgomery County Community College, Blue Bell, Pennsylvania
EVENT | Oct 12 2026

FARA & CHOP FA Symposium

Save the date! This is a free day-long event filled with presentations for people living with FA and their families, with the option to participate in-person or virtually. More information to come.

Education
EVENT | Oct 17 2026

The FARA Energy Ball

The FARA Energy Ball is a high-energy gala that brings together hundreds of supporters to raise funds for critical research into Friedreich's ataxia (FA).

FARA Energy Ball
Tampa Marriott Water Street, Tampa, Florida

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses