Upcoming Events

EVENT | May 11 2026

rideATAXIA Hometown Danville

rideATAXIA
Danville, CA, Danville, California
EVENT | May 14 2026

Wheelchairs and WODS

This free workout event will raise awareness for FA. Shirts will be available for sale to benefit FARA.

Grassroots
Crossfit 302, Victoria
EVENT | May 16 2026

FA Awareness Day

Global
EVENT | May 21 2026

FARA Flash Talk #2

Join us this May for our annual FARA Flash Talks webinar series! Each session will consist of Flash Talks from FARA Graduate Research Fellowship recipients and FARA Fellows, moderated by FA community members. Learn more about some of the ongoing FA research projects made possible by your fundraising efforts. The talks are suitable for a lay audience. A brief Q&A will follow each talk.

Education
Virtual
EVENT | May 23 2026

City Barbeque Give Back Event

Eat at City Barbeque in support of FARA! Present flyer or use online code to have 20% of sales donated to FARA.

Grassroots
City Barbeque, Newark
EVENT | May 26 2026

An Informational Webinar with Solid Biosciences

Join Solid Biosciences for an informational webinar on Tuesday, May 26 at 12 PM ET for people living with FA and their families. Matthew Harmelink, MD, Therapeutic Area Head of Neuromuscular, and Seth Rotberg, Senior Manager of Patient Advocacy, will provide an update about Solid's FALCON gene therapy (SGT-212) phase 1b study.

Education
Virtual
EVENT | Jun 1 2026

9th Annual Race for Matt & Grace Golf Tournament

Golf tournament benefitting The Race for Matt & Grace, Inc.

Grassroots
Potowomut Golf Club, East Greenwich
EVENT | Jun 13 2026

Oklahoma City FA Research Reception

Education
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Jun 13 2026

Cure FA Soirée

The 9th Cure FA Soirée is an evening of arts benefitting FARA hosted by the Gehr family and the Oklahoma FA Community.

Grassroots
Omni Oklahoma City Hotel, Oklahoma City, Oklahoma
EVENT | Jul 17 2026

44th Annual Claxton Classic Golf Tournament

Your registration fee includes continental breakfast, green fees, cart, driving range, drinks, buffet lunch, and prizes.

Grassroots
Compass Pointe Golf Course, Pasadena, Maryland
EVENT | Jul 19 2026

rideATAXIA Chicago 2026

Save the date for rideATAXIA Chicago! More details to come soon!

rideATAXIA
Channahon Central Park, Channahon, Illinois
EVENT | Aug 2 2026

rideATAXIA Hometown Boston

Registration coming soon!

rideATAXIA
Lexington Visitors Center, Lexington, Massachusetts

rideATAXIA

rideATAXIA isn’t just a cycling event; it’s a powerful movement. Born from one man’s determination to defy his diagnosis, this program has grown into a vibrant community united by a common goal of finding treatments and cures for FA. Through bike rides of varying distances, rideATAXIA empowers individuals with FA, their families, and supporters to push past limitations and raise crucial funds for research.

Whether you’re an experienced cyclist or simply someone who wants to make a difference, rideATAXIA offers people of all abilities a way to join the movement.

Learn About rideATAXIA
Group of people at a fundraiser

FARA Energy Ball

The FARA Energy Ball is a high-energy gala to raise funds for critical research into Friedreich’s ataxia (FA). Guests enjoy delicious food, drinks, dancing, and entertainment, all while supporting a worthy cause. The event also features a silent and live auction.

Learn About FARA Energy Ball
Group of people at a fundraiser

Grassroots

FARA’s grassroots fundraisers have continued to be a huge force in the effort to cure FA, raising as much as $1.5 million annually. Community members can participate in the grassroots program by attending an established event or hosting their own with the help of FARA’s Grassroots team members.

Learn About Grassroots Fundraising
Fundraising event

Team FARA

Team FARA is made up of people around the globe who raise awareness for FA and fundraise for FARA. When participating in an endurance event, celebrating a birthday or milestone achievement, or just looking for a way to be involved, community members can set up a Team FARA page and help raise money for FA research.

Learn About Team FARA
Two women in pink t-shirts and sunglasses