Our Community

FARA Ambassadors are positive, supportive, peer representatives for the FA community who actively raise awareness and funds for FARA. Their support of FARA is key to continued success toward the goal of treatments and a cure for FA.

Get to know the faces behind the FA community. In this blog series, FARA Ambassadors introduce fellow community members, sharing their journeys, experiences, and passions.

Our Memorial page is a space to honor and remember those we have lost. Through shared stories and memories, these tributes celebrate their lives, accomplishments, and the enduring impact they continue to have on the FA Community.

Families may choose to create a memorial page featuring a photo and tribute in their loved one’s memory. Memorial pages are shared at the family’s request — please e-mail info@cureFA.org if you would like to submit a memorial.

For families interested in directing memorial gifts to FARA, we are happy to provide additional information and support.