News & Blog

Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich’s Ataxia

Meet the Community: Allison Rice

Stealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia

Meet the 2024 FARA Fellows

Meet the Community: Anthony Monaco

FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube

Meet the Community 2: A Closer Look – Shelby Wright

FARA Celebrates 16 Years of Funding Adaptive Cycling Equipment Through The Ataxian Athlete Initiative (AAI) 

Meet the Community 2: A Closer Look – Richard Brown

United Against Ataxia Hill Day 2024 – Registration open!

Meet the Community – Leticia Lima Mota

August 2024 – Advocacy Newsletter