News & Blog

News & Blog

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Photo of Richard Brown reading his book on publish day
Blog | Aug 26 2024

Meet the Community 2: A Closer Look – Richard Brown

Community
United Against Ataxia Hill Day – September 25, 2024
News | Aug 22 2024

United Against Ataxia Hill Day 2024 – Registration open!

Advocacy | FARA News
Blog | Aug 20 2024

Meet the Community – Leticia Lima Mota

Community
Advocacy Newsletter Hero Image
News | Aug 19 2024

August 2024 – Advocacy Newsletter

Advocacy
FA Community Conversations Genetic Medicine Webinar on August 29, 2024
News | Aug 14 2024

Join us for FA Community Conversations – Genetic Medicine on August 29, 2024

Education
Photo of Mekayla Holm at a baseball game
Blog | Aug 12 2024

Meet the Community – Mekayla Holm

Community
News | Aug 7 2024

Larimar Therapeutics Reports Several Updates on Nomlabofusp FA Program in Q2 2024 Operating and Financial Results

Industry News
Photo of a breakout group at the Lisle Research Reception.
Blog | Aug 5 2024

2024 Lisle Research Reception Recap

Events
Photo of Xande Fateicha
Blog | Jul 29 2024

Meet the Community – Xande Fateicha

Community
News | Jul 23 2024

Job Opening – Accounting Specialist

FARA News
Photo of Elvis Trompf DJ-ing
Blog | Jul 22 2024

Meet the Community – Elvis Trompf

Community
News | Jul 16 2024

FARA Advocates for Effective Inclusion of Children Early in Clinical Trials at Pediatric Inclusion Roundtable

Advocacy | FARA News