Emily Rogez
Emily Rogez has served as a FARA ambassador since 2023 and dedicates her time spreading Friedreich’s Ataxia awareness and sharing her story to the newly diagnosed hoping to help them with resources and support. Emily loves to travel and her favorite FARA events are the CHOP Symposium in Philadelphia, rideATAXIA events and the CureFA Soirée. Emily would tell someone newly diagnosed, “An FA diagnosis is not the end of the world, you can still do what you want you just may have to do it differently, live life to the fullest!”
Emily Rogez has served as a FARA ambassador since 2023 and dedicates her time spreading Friedreich’s Ataxia awareness and sharing her story to the newly diagnosed hoping to help them with resources and support. Emily loves to travel and her favorite FARA events are the CHOP Symposium in Philadelphia, rideATAXIA events and the CureFA Soirée. Emily would tell someone newly diagnosed, “An FA diagnosis is not the end of the world, you can still do what you want you just may have to do it differently, live life to the fullest!”