News & Blog

PTC Therapeutics Announces Positive Results from Long-Term Treatment Studies and Updates on Regulatory Progress for Vatiquinone Friedreich Ataxia Program

Meet the Community 2: A Closer Look — Alijana Shakya 

2024 Fuzzy Buzzy Recap

Meet the Community 2: A Closer Look – Alex Fielding

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich’s Ataxia

Meet the Community: Allison Rice

Stealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia

Meet the 2024 FARA Fellows

Meet the Community: Anthony Monaco

FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube

Meet the Community 2: A Closer Look – Shelby Wright