News & Blog

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News | May 22 2026

Recordings Available: FARA Flash Talks 2026

Recordings are now available for the 2026 FARA Flash Talks! If you were unable to watch this year's Flash Talks live, please view the se...

Education
News | May 18 2026

Design Therapeutics Announces Four-Week IV Data from the RESTORE-FA Trial of DT-216P2 Demonstrating Clinical Improvements and Comprehensive Biomarker Activity in FA

Industry News
Blog | May 18 2026

Meet The Community: Shay

Community
News | May 15 2026

Press release and community statement: Lexeo Therapeutics Reports First Quarter 2026 Financial Results and Operational Highlights

Industry News
Blog | May 11 2026

Meet The Community: Christina Laurin

Community
Blog | May 5 2026

Meet The Community: Amelia and Laurel

Community
News | May 1 2026

May is FA Awareness Month: Help raise awareness and move research forward!

News | Apr 27 2026

April 2026 – Advocacy Newsletter

Advocacy
Blog | Apr 27 2026

Meet The Community: Frankie Leath

Community
News | Apr 22 2026

Community Statement: Update from Biogen

Industry News
Blog | Apr 20 2026

Good Times, Big Hearts, and Movements Toward a Cure: Recap of rideATAXIA Hometown Lake Charles 2026

Events
News | Apr 17 2026

Job Posting: Director of Finance & Accounting

FARA News