Funded Grants

FARA-Funded Research Grants

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Postdoctoral Fellowship | Mechanism or Pathway of Disease

Grant Awarded | Feb 2026

Investigating spinal sensory-motor circuit pathology in two mouse models of FA

Nicholas Stachowski, PhD
Children's Hospital of Philadelphia

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Feb 2026

Predicting Disease Progression in Paediatric Friedreich Ataxia with a Generative AI–Enabled Platform

Pubudu Pathirana, PhD
Deakin University

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Feb 2026

Neuro-otology: Diffusion MRI and audiological biomarkers for Friedreich ataxia disease progression

Julien Zanin, PhD
University of Melbourne

General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Jan 2026

RNA Writing Trans-Splicing for Enhancing Frataxin Translation

Jonathan Gootenberg, PhD, and Omar Abudayyeh, PhD
Beth Israel Deaconess Medical Center and Brigham and Women’s Hospital

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Jan 2026

Characterization of Fatigue in Patients with Friedreich’s Ataxia by Assessment of Mitochondrial Function in Skeletal and Cardiac Muscle

Puneet Bagga, PhD
St. Jude Children's Research Hospital

General Research Grant | Mechanism or Pathway of Disease

Grant Awarded | Jan 2026

Correcting Cell-Autonomous Neuroinflammatory Phenotypes in Friedreich’s Ataxia Microglia Using iPSC-Based Approaches

Stefano Stifani, PhD, and Massimo Pandolfo, MD
McGill University

General Research Grant | Cell & Animal Models

Grant Awarded | Jan 2026

Development and Validation of a New Friedreich’s Ataxia Isogenic Control Mouse

Marek Napierala, PhD
University of Texas Southwestern Medical Center

Postdoctoral Research Award | Mechanism or Pathway of Disease

Grant Awarded | Jan 2026

Exploiting Time-Specific Frataxin Inactivation to Unravel Its Role in Peripheral Neurodegeneration in Friedreich Ataxia

Agostina Di Pizio, PhD
CNR Institute of Neuroscience (IN-CNR)

General Research Grant | Mechanism or Pathway of Disease

Grant Awarded | Jan 2026

Structural Dynamics of the Iron-Sulfur Cluster Assembly Machinery in Patient-Derived FRDA Cells Using Super-Resolution Microscopy

Javier Santos, PhD
Universidad de Buenos Aires

Award for Innovative Mindset (AIM) | Mechanism or Pathway of Disease

Grant Awarded | Nov 2025

Organelle-Specific Proteomic Profiling to Elucidate Mitochondrial Dysfunction and Therapeutic Mitochondrial Transfer in Friedreich’s Ataxia

Natalia Gomez-Ospina, PhD
Stanford University

Postdoctoral Research Award | Cell & Animal Models

Grant Awarded | Nov 2025

Unravelling cell type sensitivity to frataxin depletion versus partial frataxin dysfunction using zebrafish models

Jessy Van Asperen, PhD
University of Lyon, France

General Research Grant | Mechanism or Pathway of Disease

Grant Awarded | Oct 2025

Investigating satellite glial cell phenotypes and functions in the pathogenesis of Friedreich’s ataxia

Cendra Agulhon, PhD
Centre national de la recherche scientifique