News & Blog

News & Blog

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Blog | Oct 4 2024

Meet the Community 2: A Closer Look — Alijana Shakya 

Community
Blog | Sep 23 2024

Meet the Community 2: A Closer Look – Alex Fielding

Community
News | Sep 20 2024

Congressional Resolution Passes to Designate September 25 as “National Ataxia Awareness Day”

Advocacy
News | Sep 17 2024

Papillon Therapeutics Receives Orphan Drug Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich’s Ataxia

Industry News
Blog | Sep 16 2024

Meet the Community: Allison Rice

Community
News | Sep 11 2024

Stealth BioTherapeutics Awarded Grant from Friedreich’s Ataxia Research Alliance and FARA Ireland to Develop Investigational Mitochondrial Therapeutic SBT-589 for Friedreich’s Ataxia

FARA News | Industry News | Research
News | Sep 10 2024

Meet the 2024 FARA Fellows

FARA News | Research
Blog | Sep 9 2024

Meet the Community: Anthony Monaco

Community
News | Sep 4 2024

FA Community Conversations Genetic Therapies Webinar: Recording Available on YouTube

Education
Blog | Sep 3 2024

Meet the Community 2: A Closer Look – Shelby Wright

Community
News | Aug 27 2024

FARA Celebrates 16 Years of Funding Adaptive Cycling Equipment Through The Ataxian Athlete Initiative (AAI) 

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