News & Blog

2026 Houston Research Reception Recap

Job Posting: Development Manager (Major Gifts)

Meet The Community: Destiney Key

Meet The Community: Zach Gault

Meet the Community: Janice

Everest Clinical Research and the Friedreich’s Ataxia Research Alliance (FARA) Announce Biostatistics Partnership to Advance Research in Friedreich’s Ataxia

Larimar Therapeutics Announces FDA Breakthrough Therapy Designation for Nomlabofusp in FA and Reiterates Planned BLA Submission in June 2026

Meet the Community: Theresa Kornfell

PTC Therapeutics Provides Corporate Update and Reports Fourth Quarter and Full Year 2025 Financial Results

January/February 2026 – Advocacy Newsletter

Meet the Community: Josh Wooten

Meet the Community: Preston Lynch