Advocacy Newsletter - February 2022

February 28, 2022 marks the fourteenth Rare Disease Day!

Since it was first launched by EURORDIS, thousands of events have taken place across the world, reaching millions of people and resulting in a growing public awareness of rare disease. We invite you to add your voice to this global initiative and participate in one, or more, of the many rare disease events listed below.

FARA also encourages our U.S. residents to mark Rare Disease Day by reaching out to your Members of Congress. So far, there are twelve FARA advocates participating in Rare Disease Week on Capitol Hill. If the time commitment of that program is not possible with for you, emailing your Members is a great option to raise awareness about FA, as well as support FARA’s CDMRP effort!