News & Blog

News & Blog

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News | Nov 4 2024

Webinar Recording: An Informational Webinar Hosted by Larimar Therapeutics — November 2024

FARA News | Industry News
Small group photo from FA Symposium 2024 – ambassador award winners
Blog | Nov 4 2024

2024 rideATAXIA Philly and FARA & CHOP FA Symposium Recap

Events
Photo of Daniel Huber
Blog | Oct 28 2024

Meet The Community: Daniel Huber

Community
Photo of Kendall Harvey and family
Blog | Oct 21 2024

Meet The Community: Kendall Harvey

Community
News | Oct 16 2024

Papillon Therapeutics Receives Rare Pediatric Disease Designation from the U.S. Food and Drug Administration for PPL-001 for the Treatment of Friedreich’s Ataxia

Industry News
Twin Cities 2024 Group Photo
Blog | Oct 14 2024

2024 rideATAXIA Hometown Twin Cities, MN Recap

Events
News | Oct 8 2024

PTC Therapeutics Announces Positive Results from Long-Term Treatment Studies and Updates on Regulatory Progress for Vatiquinone Friedreich Ataxia Program

Industry News
photo of Alijana Shakya 
Blog | Oct 4 2024

Meet the Community 2: A Closer Look — Alijana Shakya 

Community
Advocacy Newsletter Hero Image
News | Sep 26 2024

September 2024 – Advocacy Newsletter

Advocacy
News | Sep 25 2024

Webinar Recording: An Informational Webinar Hosted by Lexeo Therapeutics — September 2024

FARA News | Industry News
Alex Fielding and FA Friends, Alex and Sam Bode.
Blog | Sep 23 2024

Meet the Community 2: A Closer Look – Alex Fielding

Community