Congressionally Directed Medical Research Programs (CDMRP)

CDMRP receives annual appropriations that are disease or condition-specific. Hereditary Ataxia has been included on the list of eligible diseases within the Peer-Reviewed Medical Research Program since 2023. All organizations, including foreign organizations, foreign public entities, and international organizations, are eligible to apply for funding.

The following mechanisms provide funding opportunities for Hereditary Ataxia research:

  • Clinical Trial Award: Supports the rapid implementation of clinical trials of novel interventions.
  • Discovery Award: Supports the exploration of a highly innovative new concept or untested theory.
  • Focused Program Award: Supports a synergistic, multidisciplinary research program of at least four distinct but complementary projects addressing an overarching goal/question.
  • Investigator-Initiated Research Award: Supports research that will make an original and important contribution to the field of research or patient care in the Topic Area(s) of interest.
  • Technology/Therapeutic Development Award: Supports the translation of promising preclinical findings into clinical applications for prevention, detection, diagnosis, treatment, and/or quality of life.

Other Non-Profit Organizations

National Ataxia Foundation (NAF)

NAF is a non-profit organization whose purpose is to accelerate the development of treatments and a cure while working to improve the lives of those living with Ataxia.

Muscular Dystrophy Association (MDA)

MDA is a non-profit organization dedicated to raising funds to support research efforts towards drug development and clinical trials for muscular dystrophy, amyotrophic lateral sclerosis or ALS, and related disorders. MDA also provides services and support to families with affected individuals in the form of medical equipment, support groups and educational seminars.

Ataxia UK

Ataxia UK is a charity in the United Kingdom dedicated to supporting individuals with all types of ataxia. This support includes raising funds for medical research to develop treatments and cures; raising awareness about the needs of individuals with ataxia in the greater public community; and providing advice and resources for individuals and families affected by ataxia.


National Institutes of Health

A principal concern of the NIH is to invest wisely the tax dollars entrusted to it for the support and conduct of biomedical research. Below you can find grants and funding opportunities offered by NIH.

NIH is comprised of about 25 separate Institutes and Centers. The Institutes listed below cover one or more symptoms associated with Friedreich’s ataxia. You can click on a link to a selected institute to learn more about grant funding and areas of program interest.

National Institutes of Health (NIH)


National Institute for Neurological Disorders and Stroke (NINDS)

The NIH Institute with primary oversight of biomedical research on Friedreich’s Ataxia.


National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)


National Heart, Lung, and Blood Institute (NHLBI)


National Human Genome Research Institute (NHGRI)


National Institute on Aging


National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)


National Institute of Child and Human Development (NICHD)


National Institute on Deafness & Other Communication Disorders (NIDCD)


The NIH RePORTER (Research Portfolio Online Reporting Tools) is a searchable repository of NIH-funded biomedical research projects, as well as publications and patents resulting from NIH funding.