Showing 61–72 of 918 results for ''

Megan has served as a FARA ambassador since 2025 and dedicates her time to connecting with the FA community & striving to cure FA. She enjoys reading, writing, and spending time with her dog, Cooper. Her favorite FARA event is the research receptions. Megan would tell someone newly diagnosed to take it one day at a time. A bad day doesn’t equal a bad life!

Jakob Mitterhauser has served as a FARA ambassador since 2018 and dedicates his time to build bridges between the US and Europe and raise awareness with the Meet the Community interviews. He is currently doing his PhD in urban climate. Apart from that, he enjoys rowing and spending time with family and friends. His favorite FARA event is the CHOP Symposium in Philadelphia because FAmilies come together and the spirit is amazing. Jakob would tell someone newly diagnosed “Stay active and healthy every day. Look for inspiration and train your mind to see the good”.

Tony has served as a FARA ambassador since 2025 and dedicates his time to making a difference in the FA community. Tony has a Bachelor's degree in history. He likes to read, watch movies, and stream video games on Twitch. Tony would tell someone newly diagnosed "reach out to those with FA to learn best strategies to face this illness; don't make the same mistake that I did".

Hey I’m Mike, I just started and I’ve been dealing with FAS for over 25 years. I’d love to share my experience and knowledge with others. I have a beautiful nine-year-old daughter, and I love watching Philadelphia sports. I don’t mind having a drink every once in a while. Unfortunately, I haven’t been to a FARA event in years, and I hope that changes soon. I’m from New Jersey and I just turned 40. If I were to explain It’s not the end of the world, but it can be tough to deal with at times. But I think of it like this: we’ve been put on this earth like this because we can deal with it physically and mentally, and everyone else couldn’t.

Riley has served as a FARA ambassador since 2025 and dedicates her time to sharing her FA experience and connecting with other patients. She loves hanging out with friends, working out, singing, and the beach. She wants to be a therapist for young adults/ teens. Her favorite FARA event is the Energy Ball. Riley would tell someone newly diagnosed “It’s a crazy experience getting diagnosed but FA doesn’t define the person who you are. You will die and live with FA, it doesn’t control your life and friendships/ relationships.”

Nuria has served as a FARA ambassador since 2025 and dedicates her time to raising FA awareness in Spain. She is a pharmacist and loves reading novels. Her favorite FARA event is the IARC. Nuria would tell someone newly diagnosed to live their life and enjoy the small things.

Tahlia has served as a FARA ambassador since March 2025 and dedicates her time to get to know others that are passionate about finding a cure. She graduated Penn State University in 2023 and carries on her love of watching sports. She hopes to enter the legal profession/attend law school soon as she is interested in advocacy and criminal law. Her older brother also has FA. Her favorite FARA event is NJ Seaside Stride. Tahlia would tell someone newly diagnosed “FA doesn’t stop you from getting to your goal. You’ll get there, but it’ll be a different path than everyone else”.

Hayden has served as a FARA ambassador since 2025 and dedicates her time to raising awareness for the FA community. Her favorite things are doing her makeup, watching conspiracy theory videos on YouTube, or going out with friends. Her favorite event is the FA soirée in Oklahoma City! Hayden would tell someone newly diagnosed “you get free priority passes at amusement parks”.

Carrie has served as a FARA ambassador since 2019 and dedicates her time to bringing more awareness to FA and meeting others that have the disease. Carrie loves hanging out with her family and watching sports on TV. She stays active by swimming and going on bike rides on her Catrike. Carrie would tell someone newly diagnosed “Don't let having FA define who you are, as you are more than your disease”.

Rachel has served as a FARA ambassador since 2025 and dedicates her time to supporting those in the FA community and the search for a cure. She went to Southeastern Oklahoma State University and received her B.A. in Criminal Justice. She currently works as a family law paralegal. She spends her free time with her husband, their families and her two dogs. Her favorite FARA event is the rideATAXIA Dallas. Rachel would tell someone newly diagnosed that it is okay to grieve your life before your diagnosis, but your diagnosis is not the end and you have so much life left to live.

Ovais has served as a FARA Ambassador since 2023 and dedicates his time to raising awareness about Friedreich’s ataxia and contributing to the community by participating in research studies. He holds a bachelor’s degree in commerce and is currently pursuing the Chartered Accountancy course, while also working as a Financial Analyst intern at Amazon. In his free time, Ovais enjoys listening to pop music and watching travel vlogs, comedy movies, and series. Although he has not yet attended a FARA event in person, he has participated in many virtually. Ovais would tell someone newly diagnosed, “Don’t stop chasing your dreams. If you just take the first step, eventually things will fall into place—and you’ll be ready for the world when FA is cured.”