
Lealan Sims
Lealan has served as a FARA ambassador since 2013 and dedicates her time to spread awareness and gain knowledge about her genetic disease. She studied architecture and city planning and is now a mom to 2 beautiful children. She attempts to balance motherhood and volunteerism while managing FA and maintaining a love for life. An endless amount of gratitude goes out to her husband Daniel, family, and friends! Her favorite FARA event is The Energy Ball, which allows her to use her graphic design skills in planning the event, see all of the supportive faces and, of course, have an opportunity to dress up. Lealan would tell someone newly diagnosed to connect with as many FAmily as possible, learn everything you can about FA research, get involved in some small way and, if you’re reading this, thank you!
Lealan has served as a FARA ambassador since 2013 and dedicates her time to spread awareness and gain knowledge about her genetic disease. She studied architecture and city planning and is now a mom to 2 beautiful children. She attempts to balance motherhood and volunteerism while managing FA and maintaining a love for life. An endless amount of gratitude goes out to her husband Daniel, family, and friends! Her favorite FARA event is The Energy Ball, which allows her to use her graphic design skills in planning the event, see all of the supportive faces and, of course, have an opportunity to dress up. Lealan would tell someone newly diagnosed to connect with as many FAmily as possible, learn everything you can about FA research, get involved in some small way and, if you’re reading this, thank you!