Name: Casey Kasselder
Age: 32
Where do you call home? Tri-Cities, WA
What is your education [degree(s)]? I have a degree in Criminal Justice. My future goal would be to work with the Federal Bureau of Investigation.
Who do you live with? I live on my own with my Yellow Labrador Bear.
What’s a typical day for you? My day consists of various volunteer roles, including website design and assisting with Accessible Technologies for those who need these services. If I am not doing those activities, you’ll catch me with a book or playing with my dog.
How long have you known you are living with FA? I have been living with FA for about 18 years.
Are there any others with FA in your family? To the best of my knowledge, I am the only person in my family living with FA.
What do you like to do to stay active and what type of exercises work for you to stay strong? I stay active by using my stationary bike, enduring physical therapy, and always moving.
Do you have any hobbies or special interests? My hobbies include helping others, going for strolls, reading, listening to music, and being around my friends.
What is a good trick to make daily life easier? Staying positive and finding joy in life, even during tough times, it can make a big difference. It’s important to acknowledge our feelings, but also to remember that life keeps moving forward. Embracing happiness whenever possible can truly enhance our overall well-being.
When FA gets you down, what do you think/do to feel better? I have found strength and comfort in my faith during challenging times. Holding onto something that gives me hope and reassurance can be incredibly powerful. Remember, it’s okay to feel down sometimes, but having a source of support and positivity can help me navigate through those moments.
What is one way living with FA has POSITIVELY affected your life? Embracing my unique journey and using it to make a difference is a powerful testament to who I am.
What is the best advice YOU could give to a person who has been newly diagnosed with FA? FA is a dark pit; however, there is hope. You just have to look for the light, and if you can’t find it, be it. Something I remind myself of daily.
Interview by:
Andrea Kiess