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Home > FARA Events

FARA Events

Check out some of our upcoming fundraisers, rideATAXIA events, community education sessions, webinars, and more!

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12 events found.

Events

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Today
  • January 2025

  • Tue 21

    An Informational Webinar hosted by PTC Therapeutics

    January 21, 2025 @ 12:00 pm - 1:00 pm
    Virtual
  • February 2025

  • Sat 1
    Grassroots events logo

    Runway to the Cure

    February 1, 2025 @ 6:00 pm - 10:00 pm
    Banyan Air 1710 NW 62 Street, Fort Lauderdale, FL, United States
  • Sat 8
    FARA education logo

    FA Research Reception – Chandler, AZ

    February 8, 2025 @ 1:00 pm - 5:30 pm
    Hilton Phoenix Chandler 2929 West Frye Road, Chandler, United States
  • Mon 24

    Rare Disease Week in D.C.

    February 24, 2025 - February 26, 2025 Rare Disease Week in D.C.
    Capitol Hill Capitol Hill, Washington D.C., DC, United States
  • Tue 25

    Rare Disease Week in D.C.

    February 25, 2025 - February 27, 2025 Rare Disease Week in D.C.
    Capitol Hill Capitol Hill, Washington D.C., DC, United States
  • Wed 26

    Rare Disease Week in D.C.

    February 26, 2025 - February 28, 2025 Rare Disease Week in D.C.
    Capitol Hill Capitol Hill, Washington D.C., DC, United States
  • Thu 27
    FDA NIH Rare Disease Day, February 27-28, 2025

    Rare Disease Day at NIH & FDA

    February 27, 2025 - February 28, 2025 Rare Disease Day at NIH & FDA
    Natcher Conference Center NIH Building 45, Bethesda, MD, United States
  • Fri 28
    FARA advocacy logo

    Rare Disease Day

    February 28, 2025 Rare Disease Day
    Global
  • Fri 28
    FDA NIH Rare Disease Day, February 27-28, 2025

    Rare Disease Day at NIH & FDA

    February 28, 2025 - March 1, 2025 Rare Disease Day at NIH & FDA
    Natcher Conference Center NIH Building 45, Bethesda, MD, United States
  • April 2025

  • Wed 2
    FARA research logo

    FARA Flask Talks Session #2

    April 2, 2025 @ 12:00 pm - 1:00 pm
    Virtual

    FARA Flask Talks Session #2

  • Thu 3
    FARA education logo

    Community Conversations: The Power of Advocacy for FA Research

    April 3, 2025 @ 12:00 pm - 1:00 pm
    Virtual
  • Fri 4

    University of Florida FA Forum: Research, Wellness, and Community Conversations

    April 4, 2025 @ 5:30 am - 7:30 pm
    UF Clinical and Translational Science Institute 2004 Mowry Rd, Gainesville, FL, United States
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