FA Hangouts and Teen Hangouts

FA Hangouts are social video calls for adults with FA hosted by members of the FA Hangout Team (FARA Ambassadors).
Email fahangouts@gmail.com to get on the email invitation list.
Platform: Google Meet.

Guidelines:

• Be kind and respectful.
• If you need to ask someone to repeat themselves for clarity, please do so respectfully.
• If you need to repeat yourself for clarity, take your time. You are with people who understand.
• You can opt out of any question you do not wish to answer.
• Approach discussions with a tolerance for others’ ideas, if they differ from your own.
• Moderators do not represent FARA’s position.
• Moderators are not medical professionals and will not give medical advice.
• Caregivers to assist are welcome to accompany adults with FA.

FARA Teen Hangouts are hour-long web-based hangouts on Zoom that are exclusively meant for teens with ataxia. There will also be at least two adult FARA Ambassadors present. The adults will be there to help keep the conversation safe and going. Teen Hangouts are open to teens ages 13 to 19 with ataxia (please note: teens of all ages will be together and teens under 18 require parental consent in order to participate). If a teen doesn’t have ataxia, they are not allowed to participate in the hangout.

The hangout will open 15 minutes early. Please arrive early if you can to work out any technical issues, especially if you have not attended a hangout before.

Guidelines:

• If you or your child is under 18 – The parent or guardian of the participant needs to sign a consent form. Please use the button below to fill out the Microsoft form for the Teen Hangouts consent. Please email farateenhangouts@gmail.com if you or your child have any questions.
• 18 years old+ – Email farateenhangouts@gmail.com to let us know that your are interested in attending Teen Hangouts and your age. We will respond with the meeting Zoom link.
• Returning to the Teen Hangouts – You will be on an email list to receive the Zoom invite before every Teen Hangout. Please email us if you do not receive a Zoom invite.
• For Parents – If you already signed the parental consent for your child, the zoom invite will either be sent to your email or your child’s email. Please contact us if you or your child need the Zoom invite or if you have any questions.