Funded Grants

FARA-Funded Research Grants

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Award for Innovative Mindset (AIM) | Mechanism or Pathway of Disease

Grant Awarded | Oct 2025

Exploring the Role of Extracellular Traps in the Pathogenesis of Friedreich’s Ataxia

Katia Aquilano, PhD
University of Rome Tor Vergata, Italy

Award for Innovative Mindset (AIM) | Mechanism or Pathway of Disease

Grant Awarded | Aug 2025

The N-terminus of frataxin and its role in FRDA

David Lynch, MD, PhD, Jill Napierala, PhD, Yina Dong, PhD, Ian Blair, PhD
Children’s Hospital of Philadelphia, University of Texas Southwestern, University of Pennsylvania

Award for Innovative Mindset (AIM) | Cell & Animal Models

Grant Awarded | Jul 2025

Rational design of new CNS neuronal models for selective vulnerability in FRDA

Pietro Mazzara, PhD
Columbia University

General Research Grant | Cardiac Research

Grant Awarded | Apr 2025

Molecular and cellular mechanisms of cardiac fibrosis in Friedreich ataxia

Giovanni Manfredi, MD, PhD and Mark Payne, MD
Weill Cornell Medicine and Indiana University

Postdoctoral Research Award | Outcome Measures & Biomarkers

Grant Awarded | May 2025

Enhancing Friedreich Ataxia Research: Data Augmentation and Multimodal Fusion Focusing on the Spine-Brain Axis

Ravi Dadsena, PhD
RWTH Aachen University Hospital, Germany

Postdoctoral Fellowship | Mechanism or Pathway of Disease

Grant Awarded | Mar 2025

Inhibition of the TLR4 receptor prevents neuro-inflammation and degeneration in frataxin-deficient sensory neurons

Deepika Mokkachamy Chellapandi, PhD
Université Claude Bernard Lyon 1

General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Mar 2025

Characterization of ocular phenotype of the YG8-800 mouse model of FA and retinal-targeted treatment by AAV based CRISPR-Cas9 gene editing

Shannon Boye, PhD
University of Florida

Postdoctoral Research Award | Mechanism or Pathway of Disease

Grant Awarded | Mar 2025

Unraveling Epigenetic Mechanisms and Therapeutic Strategies for FXN Silencing in Friedreich’s Ataxia

Xiaonan Guan, PhD
New York Genome Center

General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Jan 2025

Rescuing frataxin expression by alternative splicing reprogramming with base editing

Alessandro Quattrone, PhD
University of Trento

General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Dec 2024

Application of RSwitch technology to improve Friedreich’s ataxia viral gene therapy safety and efficacy: control of FXN transgene expression through a small molecule regulation

Samuel Hasson, PhD
Rgenta Therapeutics, Inc

Award for Innovative Mindset (AIM) | Gene & Stem Cell Therapy

Grant Awarded | Dec 2024

Development of Epigenetic Editors for Frataxin Reactivation

Daniel Hart, PhD
Epicrispr Biotechnologies, Inc.

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Nov 2024

Quantifying sitting balance in children and adults with Friedreich ataxia – development of clinical and instrumented measures

Sarah Milne, PhD
Murdoch Children’s Research Institute