Funded Grants

FARA-Funded Research Grants

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Award for Innovative Mindset (AIM) | Gene & Stem Cell Therapy

Grant Awarded | Dec 2024

Development of Epigenetic Editors for Frataxin Reactivation

Daniel Hart, PhD
Epicrispr Biotechnologies, Inc.

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Nov 2024

Quantifying sitting balance in children and adults with Friedreich ataxia – development of clinical and instrumented measures

Sarah Milne, PhD
Murdoch Children’s Research Institute

Postdoctoral Fellowship | Mechanism or Pathway of Disease

Grant Awarded | Nov 2024

Design and synthesis of SynGR library to probe into the role of NSD-2,3 proteins in FXN expression in FRDA

Anushree Achari, PhD
St. Jude Children’s Research Hospital

Bronya J. Keats Research Collaboration Award | Improving Clinical Outcomes

Grant Awarded | Nov 2024

Impact of cerebellar transcranial direct current stimulation on FA brain and cerebellar neurophysiological fingerprints and on clinical symptoms assessed by multimodal evaluations

Gilles Naeije, MD, PhD
Université Libre de Bruxelles, Belgium

Postdoctoral Fellowship | Mechanism or Pathway of Disease

Grant Awarded | Oct 2024

Understanding the Pathogenesis of Friedreich’s Ataxia by Single-Cell Integration of Gene Expression, Epigenetics and Connectivity in the Cerebellar Nuclei

Julian Cheron, MD, PhD
Johns Hopkins University

Postdoctoral Research Award | Gene & Stem Cell Therapy

Grant Awarded | Oct 2024

Enhancing Gene Therapy Delivery to the Brain via Human Blood-Brain Barrier Receptors

Changfan Lin, PhD
California Institute of Technology

General Research Grant | Outcome Measures & Biomarkers

Grant Awarded | Oct 2024

Mitochondrial Enzyme Activity and Biomarker Evaluation in FA Treatment (MEABET-FA)

Lucie Stovickova, MD
Charles University and Motol University Hospital, Prague

Graduate Research Fellowship | Gene & Stem Cell Therapy

Grant Awarded | Sep 2024

Shortening GAA repeats in Friedreich’s Ataxia

David Berryman
University of Florida

Graduate Research Fellowship | Lead Candidates

Grant Awarded | Sep 2024

NRF2 and MAO-Ai therapy to improve cardiac health and prevent arrhythmias in Friedreich’s ataxia

Francisco Figueroa
University of California, Davis

General Research Grant | Gene & Stem Cell Therapy

Grant Awarded | Sep 2024

Postnatal development of the cerebellar circuitry in the KIKO mouse model of Friedreich’s ataxia

Jordi Magrane, PhD
Weill Cornell Medicine

Kyle Bryant Translational Research Award | Lead Candidates

Grant Awarded | Sep 2024

Developing the novel investigational mitochondrial therapeutic SBT-589 for Friedreich’s ataxia

Laura Kropp, PhD, MPH
Stealth BioTherapeutics

Keith Michael Andrus Cardiac Award | Cardiac Research

Grant Awarded | Sep 2024

Evaluating the cardioprotective effect of omaveloxolone on Friedreich ataxia heart disease

Shiang Lim, MPharm, PhD
St Vincent's Institute of Medical Research