Join us in the Houston area for a free educational event!

Date: Saturday, March 14, 2026

Time: Registration opens at 11:30am. Lunch served from 12pm–1pm. Program concludes by 5pm. More details to come.

Location: Embassy Suites by Hilton The Woodlands® at Hughes Landing*

Agenda: Agenda now available. Click here to view.

Speakers will include Kellyn Madden, Director of Patient Engagement, FARA, and a talk on clinical management from David Lynch, MD, PhD, Attending Physician, Division of Neurology, The Children’s Hospital of Philadelphia & Director of the Friedreich’s Ataxia Program, Professor of Neurology, and Co-Director, FA Center of Excellence at Children’s Hospital of Philadelphia (CHOP). Please submit any questions you’d like to ask Dr. Lynch here.

*Note: This event is in-person only. It will not be livestreamed or recorded.

2026 Research Reception Social 1

Hotel Block

Embassy Suites by Hilton The Woodlands® at Hughes Landing 
1855 Hughes Landing Blvd, The Woodlands, TX 77380

Hotel Parking: Self-park $35/day, Valet parking $40/day

The hotel block is now closed, but rooms may still be available. Visit the link below or call the hotel at (281) 298-2900.

Visit Hotel Website
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