Edanur Sekmen Name: Edanur Sekmen

Age: 18

Where do you call home? Turkey

What is your education? I am a high school graduate.

Who do you live with? I live with my mother, father and siblings.

How long have you known you are living with FA? I was diagnosed with FA 1.5 years ago.


Are there any others with FA in your family? No.

Describe an adaptation and/or transition you have had to take due to living with FA. I do not use a walker or a wheelchair.

Edanur Sekmen What do you like to do to stay active and what type of exercises work for you to stay strong? I participate in physical therapy and walking.

When FA gets you down, what do you think/do to feel better? I watch motivational videos.

What is one way living with FA has POSITIVELY affected your life? I have learned to know how to make do with what I have.

What is the best advice YOU could give to a person who has been newly diagnosed with FA? Don’t give up.

What is the first thing you want to do when a cure/treatment to FA is found? Walking alone to infinity.

Interviewed by
Interviewed by Xhesika Peza