Name: Kelley White
Age: 44
Where do you call home? Nashville, Tennessee
Education degree(s): After I graduated high school, I went to the Tennessee Rehabilitation Center. It's a school for people with different disabilities, anywhere from developmental to physical. I lived there for 10 months (went home some weekends). I earned a clerk/typist certificate. Then I went to work at Volunteer State Community College for almost 17 years.
Who do you live with? I live with my mom and stepdad. I was married, 20 years ago.
What's a typical day for you? A typical day begins with showering, coffee, and breakfast. I have PT twice a week. I recently got a power chair and learned to control it. So I would like to start volunteering somewhere.
How long have you known you are living with FA? I started having symptoms around 7 years old. I was finally diagnosed at the age of 12 after many tests and doctors.
Are there any others with FA in your family? No
Describe your transition from walking to walker/wheelchair. I had a really difficult time walking in junior high and high school. It would just wear me out. I had scoliosis surgery in 1991 and walking became harder. I started using a scooter then a manual wheelchair. It was a big relief.
What do you like to do to stay active and what type of exercises work for you to stay strong? I do PT, we are working on strengthening my core and we do leg stretches.
Do you have any hobbies or special interests? I like to take pictures but my hands don't work good enough to use a camera anymore. I really enjoy listening to music.
When FA gets you down, what do you think/do to feel better? I pray!
What is one way living with FA has POSITIVELY affected your life? I really think it had taught me to be more compassionate. I have a soft heart, especially for animals and "broken" people.
What is a favorite motivational quote of yours? I can do all things through Christ who strengthens me.
What is the best advice YOU could give to a person who has been newly diagnosed with FA? Life is a struggle, just don't give up. Keep moving.
What is the first thing you want to do when a cure/treatment to FA is found? Move out on my own!
