News & Blog

Meet the Community: Anna Morrow

Meet the 2025 FARA Fellows

Press Release and Community Statement: Lexeo Therapeutics Announces FDA Breakthrough Therapy Designation for LX2006 in Friedreich Ataxia

Meet the Community: Megan Ploch

June/July 2025 – Advocacy Newsletter

Press Release: Muscular Dystrophy Association and Friedreich’s Ataxia Research Alliance Announce New Collaborative Grant to Study Cardiac Fibrosis in Friedreich’s Ataxia

Meet the Community: Kailey Newcity

2025 Cure FA Soirée Recap

Press Release: Larimar Therapeutics Announces FDA Recommendations on Safety Database, and Other Details of Nomlabofusp BLA Submission for Friedreich’s Ataxia Program

Press Release and Community Statement: Biogen Initiates Phase 3 Pediatric Study of Omaveloxolone for the Treatment of Friedreich Ataxia

Meet the Community: Mark Kuchmas

Meet the Community: Luciana Grasiele Nogueira