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News | Mar 19 2024

March 2024 – Advocacy Newsletter

Advocacy
News | Mar 11 2024

Larimar Therapeutics Announces the Dosing of the First Patient in Long-term Open Label Extension Study for Nomlabofusp in Patients with Friedreich’s Ataxia

Industry News
News | Mar 4 2024

FA Community Update from Biogen

Industry News
News | Feb 28 2024

February 2024 – Advocacy Newsletter

Advocacy
News | Feb 26 2024

Voyager Therapeutics Announces Selection of Gene Therapy Development Candidate for Friedreich’s Ataxia in Collaboration with Neurocrine Biosciences, Triggering Milestone Payment

Voyager Therapeutics, Inc. (Nasdaq: VYGR), a biotechnology company dedicated to advancing neurogenetic medicines, today announced that t...

Industry News
News | Feb 12 2024

Larimar Therapeutics Reports Positive Top-line Data from Phase 2 Dose Exploration Study from 25 mg and 50 mg Cohorts of Nomlabofusp in Patients with Friedreich’s Ataxia

Industry News
News | Feb 12 2024

Biogen Received European Commission Approval for SKYCLARYS® (omaveloxolone), the First Therapy to Treat Friedreich’s Ataxia

Industry News
News | Jan 30 2024

January 2024 – Advocacy Newsletter

Advocacy
News | Dec 15 2023

CHMP Issues Positive Opinion for Biogen’s SKYCLARYS® (omaveloxolone), the First Therapy to Treat Friedreich’s Ataxia, a Rare Neurodegenerative Disease

Industry News
News | Sep 26 2023

Biogen Completes Acquisition of Reata Pharmaceuticals

Industry News
News | Aug 14 2023

Design Therapeutics Provides Pipeline Update and Reports Second Quarter 2023 Financial Results

Initial Data from Phase 1 Multiple-Ascending Dose Trial of DT-216 for Friedreich Ataxia Showed Significant Increase in FXN mRNA Levels i...

Industry News
News | Aug 11 2023

2023 FARA Fellows

The FARA Fellow Program recognizes young investigators who will commit their early career to FA research and want to grow their profile ...

FARA News | Research