News & Blog

Community Statement: Biogen announces BRAVE Phase 3 Pediatric Study of Omaveloxolone

Meet the Community: Natalie Rex

April/May 2025 – Advocacy Newsletter

Meet the Community: Paul Hardwick

Webinar Recording: Solid Biosciences April 2025 Update

Participating in Research: Joe Tyler

Meet the Community: Sydni Dupre

2025 rideATAXIA Gainesville Recap

Press Release & Community Update: Lexeo Therapeutics Announces Positive Interim Phase 1/2 Data for LX2006 in Friedreich Ataxia Cardiomyopathy Supporting Advancement to Registrational Study

Meet the Community: Natalija Stanojevic

Meet the Community: Tyler and Amanda

March 2025 – Advocacy Newsletter