News & Blog

Meet the Community: Donna Littell

Webinar Recording: Solid Biosciences September 2025 Update

Siblings Jake and Claire Juip face Friedreich’s ataxia together

2025 FA Swing for a Cure Tournament Recap

Meet the Community: Braxton Terrebonne

Meet the Community: Erin Solomon

Webinar Recording: Larimar June 2025 Update

Press Release & Community Statement: PTC Therapeutics Receives Complete Response Letter for Vatiquinone NDA

Meet the Community: Armin Mansory

August 2025 – Advocacy Newsletter

Meet the Community: Carla Poletti

Take Action to Raise Awareness for FA—Submit a Proclamation Request!