The Scientific Advisory Board serves as advisors on FARA’s scientific research priorities, goals and programs as well as medical issues that arise from FA and treatment implementation.
Key Responsibilities:
A commitment to FARA's mission; advancing treatments & improving clinical outcomes for individuals with FA.
A commitment to helping FARA grow and nurture the FA research community.
To promote collaboration in the FA research community.
Reviewing grants and making funding recommendations
Assessing gaps in research portfolio and making recommendations for new opportunites/research directions
Co-Chairs
Bronya Keats, PhD Emeritus Professor of Genetics, LSU Health Sciences Center FARA, Chief Research Officer
Giovanni Manfredi, MD, PhD Professor of Neurology and Neuroscience Weill Cornell Medical College
Advisors
Sanjay Bidichandani, PhD Section Head of Genetics, University of Oklahoma College of Medicine Department of Pediatrics FARA, Board of Directors
Joy Cavagnaro, PhD President Access BIO
Joel Gottesfeld, PhD Professor Emeritus Department of Molecular Medicine Scripps Research Institute
Sidney Hecht, PhD Director, Biodesign Center for Bioenergetics Arizona State University
Arnulf Koeppen, MD Professor of Neurology and Pathology Albany Medical College
David Lynch, MD, PhD Professor of Neurology Children's Hospital of Philadelphia / University of Pennsylvania
Jane Larkindale, DPhil Executive Director Duchenne Regulatory Sciences Consortium at Critical Path Institute (C-Path)
James McArthur, PhD Venture Partner RA Capital Management, LP FARA, Board of Directors
Marek Napierala, PhD Department of Biochemistry and Molecular Genetics University of Alabama
Massimo Pandolfo, MD, FAAN, FEAN Professor (Clinical) Department of Neurology and Neurosurgery McGill University
Mark Payne, MD Professor of Pediatrics (Cardiology) Indiana University School of Medicine
Helene Puccio, PhD Department of Neurobiology and Genetics Institute of Genetics and Molecular and Cellular Biology
Bernard Ravina, PhD Chief Medical OfficerPraxis Medicines
James Rusche, PhD Independent Consultant Pharma and Biotech Product Development FARA, Board of Directors
Kevin Whittlesey, PhD Vice President, Translational Medicine 4D Molecular Therapeutics
Robert Wilson, PhD Associate Professor of Pathology and Laboratory Medicine University of Pennsylvania
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